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I have had mine for about 2 years now. I am 17 and at the time of my placement I was very, very hesitant to get the port. I just want to live a "normal" life, as I think most people want to. But I realized that this was something that would only make things easier. I hated getting PICC lines and...

Well, near the ocean is supposed to be good because the saltly air helps clear out lungs. I know that I have a hard time breathing at really high altitudes. As for humidity, I'm not really sure. I have lived in Florida my whole life so I don't have anything to compare it to.

Also, the new Nemours hospital is opening in October in the Lake Nona area. It is supposed to be really amazing. The Social Worker (who is amazing. I love her.) was telling us about it. It is going to be really high-tech and the food isn't going to be awful(!). hahah. Hospital food is always so...

Dr. Loeb and Dr. Livingston. I mostly see Loeb, but Livingston was my first CF doctor. He treated me when I was a baby. (: The CF program at Nemours is "central Florida's only nationally accredited Cystic Fibrosis Center". (from...

I love milkshakes. I use whole milk, whipping cream, ice cream, carnation instant breakfast, and whip cream. Instant breakfast by itself is pretty good too. I like the chocolate flavor because is tastes like chocolate milk. It has a lot of protein and calories if you use whole milk and it is...

I agree with viokitty. I have had mine for about 2 years now. I am 17 and at the time of my placement I was very, very hesitant to get the port. I just want to live a "normal" life, as I think most people want to. But I realized that this was something that would only make things easier. I hated...

We go to Nemours pulmonology offices in downtown Orlando. I don't know how far downtown is for you, but they might be able to refer you to one closer.