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We did not know prior to delivery that our Baby Aven would be diagnosed with CF. She was born this year on April 25, 2012. I delivered her 3 weeks early. All of our ultra sounds appeared normal and there was never any knowledge, that we could recall, that would indicate that Aven would be...

Our Baby daughter Aven was born on April 25, 2012, three weeks early. We had no knowledge, that we could recall, that would have given us any indication that Aven would be diagnosed with CF. SHe too has DDF508. We learned through our states newborn screening and then recived confirmation...

When Aven recieved her diagnosis, I decided to create a blog to help document our journey. I do not in any way, shape or form claim to be an expert or to have all the answers in regards to this disease, but as far as what we are facing.... I can tell our story. There are some blogs I have kept...

I am very new to the CF world. My 3 month old daughter Aven, was diagnosed with CF through newborn screening at 7 days old and was confirmed with DDF508 through genetic testing as well as sweat chloride test with result of 98 and 120 at 3 weeks of age.Eventhough we were experiencing loose and...

I do not have any answers for you but I am replying, because I have similar questions about my daughter and am curious as to the responses you will receive. My daughter is just 3 months old, confirmed DDF508. I am new to the CF world, but find myself just waiting for the infections to start.

Thank you so much to all that have replied. I have read all your posts multiple times and will try to respond to the questions that I have read up above and from PMs in this reply. We live near Joplin, Missouri and so we travel two hours to Children's Mercy Hospital in KC, Mo. They are the...

I believe today is the first day since May 18, 2012 that I have not cried. Our then 3 week oldbaby girl was diagnosed with CF through genetic testing after having two IRT counts of 296+ng/ml on her newborn screening. She has2 mutations- delta F508. We have seen her CF team twice now and have...