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I'm so happy for you and your family. Hope all continues to be positive.

I appreciate your well thought out post Jbrandyn. It's sad we cannot focus on what's most important (affordable and accessible healthcare) without shock value words/phrases like "socialist" or "middle class burden" being thrown about. Our system is broken and something needs to be done. I feel...

It sounds like they are ensuring they are prepared. Does she have someone to go with her to the appt? It's a whole lot of info they throw you, and I wish we would have taken notes. CJPsmom has great advice. I couldn't have my mom around because her anxiety level ratcheted mine up so much. I'll...

When I lost health insurance through my employer, we couldn't find any private insurance we could afford that would accept my daughter's asthma. I can't imagine what the premium costs would be with my son's CF. I think options are important, and we'll have to wait to see how this plays out.

LittleLab4CF, I have an appt with the pediatric dentist in August. We brush and floss his teeth regularly, but it looks as though he may be starting to have demineralization already. We start fat soluble vitamins next week, plus some extra since he's low in basically everything. <img...

Isn't it frustrating to think you've nailed what the allergy finally is, only to have the same symptoms reappear in a few weeks? I'm thankful we had the experiences prior to his diagnosis so we can find the good in it. We met with his team and they are fantastic. Everyone seems so helpful and...

Thank you all for your responses. It's so much to take in, but the info I've found on this site has been a huge help. The dietician agreed that with enzymes we may be able to add more foods back in. We started enzymes this morning and his distention already looks a bit better.

We are going to an accredited CF center. I'm thankful we have one within driving distance. They have an active research center located there as well. Based on what the docs have to work with so far, they are planning on starting enzymes next week. They also mentioned a fecal elastase(sp) test to...

Possible Meconium Ileus Any surgery is serious business, and an abdominal surgery in a newborn is definitely scary. Be informed about possible outcomes like a previous poster said, but try not to get too hung up on them. It is possible for the blockages to clear on there own. I believe that's...

Our two year old son has received a diagnosis of CF based on his sweat test level being over 100. I'm trying to read and retain as much info as possible before we meet with his team next week. It feels strange to be happy to have a diagnosis and finally know what we're fighting. His former...