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My son has CF and I've missed a lot of time at work. I've been working there for 6 months and when I had my interview they said it wouldn't be a problem, I explained that he had Dr. visits on the last tuesday a month and sometimes would have to take time off for him being sick etc. They said no...

Has anyone tried the Orec air purifier, does it work as well as they say it does? I am thinking about getting an air purifier and I've read on here not to use the Ionic ones or true Hepa. I've seen the infomercial and looked on the computer about it, but I want some feedback if someone here has...

Well I'm so proud of my son JJ. We had a Dr. appt yesterday, and he gained 4LBS!! This is the most he has gained in a while. He is drinking his scandi shakes like mad! and also he has his peptaman at night. and his PFT's are going up as well!! We have been having a problem with him doing his...

My son has a gtube, he hated it at first and now it's just there, he doesnt even think about it until bedtime. He has the healthiest appitite I've ever seen, He can eat more than a grown man! But he runs so much can't keep that kid sitting down for more than 5 minutes at a time! We put the...

My 9 year old son gets very embarassed whenever he farts or goes to the bathroom I tell him it's ok just spray like everyone else. but he really stinks bad! We tried making him feel better by telling him it was his "super power" and that worked for a while, but if we are in an elevator filled...

My son has been diganosed with CF since he was 2 months old, the scariest time in my life(or so Ithought). He hasn't been very sick only spending a couple times in the hospital. Once for polups in his nose. But now the Dr. says he is not getting enough calories, or burning them off too...