Search results

What is the best way to sterilize your nebulizer pieces (the mouth pieces and the pieces the meds go into)? I usually just put them in hot water for an hour then rinse them off but I am finding that they don't seem very clean even when I do that. Should I be using a special kind of soap or...

Now that I have finally found a job (31 interviews later... being a new college grad really sucks) I need to turn my attention to taking better care of myself. I hate to admit it but during this long drawn out job hunting process I have neglected my health. I have been doing much better with...

I was just curious if anyone has heard of someone having both CF and asthma at the same time? I had my double lung transplant 3 years ago this September and within the last couple of months I have been experiencing these strange fits of real shortness of breath all of a sudden. They last for...

Is anyone else on any type of sleep medication? If so what kind and how much? I am having so much trouble sleeping as of late. I don't know if it is stress I don't know if my body is just being funky but I am completely exhausted and I have been missing my workouts just cause I am so...

Hey Aboveallislove, I didn't get it, try sending it to my e-mail, did you get my e-mail address?

Thanks everyone so much, hearing that I am not alone has really been a boost for me tonight. Especially since I had a horrible interview today (lets just say I am considering contacting the Better Business Bureau to talk to them about the way the manager acted and interviewed me, enough said)...

I have been out of college now for a little bit and I am desperately searching for a job. I live in California and have decided to go back into the hospitality/restaurant industry because that's where I have the most experience however finding a job has been much much more difficult than I ever...

Here is my opinion from a CFer who is 26 years old and has had a little insight into this exact issue. I was exactly like your daughter was when I was 14 years old. I didn't want to do any of my treatments, I didn't want to listen to my doctors in any way, I hated to be nagged, I wanted to be...

Rebjane - I have to tell you what your daughter is doing is completely normal for her age, especially for a preteen with CF. I am a 26 year old female with CF, CFRD and I had a double lung transplant when I was 24. I was completely like your daughter is acting at her age. I really didn't care...

I am a little embarrassed to talk about this but I am learning that it is better to talk about whats going on rather then keep things inside, that has been the crux of my problems for years. I have had cystic fibrosis since I was born. I was diagnosed with cystic fibrosis related diabetes when...

Breatheforher, - I completely understand how your daughter feels. I was so incredibly overwhelmed by the thought of having to get a transplant. I honestly didn't want to do it at first. Its funny cause that is how quickly my PFT's dropped at her age. I have read through the research I have...

Hi Robbiekay, I am 26 years old, I have both cystic fibrosis and cystic fibrosis related diabetes and I received a successful lung transplant when I was 24 years old. I like you son began the evaluation process when I was 22. I'm not going to lie, the process takes a bit of time depending on...

I have both cystic fibrosis and CFRD (cystic fibrosis related diabetes). I was diagnosed with CF at birth and CFRD when I was 13. First just because you have CF doesn't mean you will get CFRD. In all the research I have done it is my understanding that about 40% of people with CF will develop...

This is so wonderful to hear!! I am so glad that your son seems to be thriving. How old is he? I had my GI tube first removed when I was 13. As you can imagine, being a 13 year old girl going into my freshman year of high school was trying enough, I was thriving at the time so I didn't need...

I totally understand how you feel, I absolutely hated hospitals. But your doctor is right when it comes to the hospital IV's vs. the at home IV's, generally you do better in the hospital. I have been in the hospital more times then I can count and I have found that if you make your room...

Hi Kaethe, I know you are going through a lot but you are doing exactly what you should be doing, reaching out for help and getting support. You and your family can't do this alone. It is so important that you take care of yourself as well as your baby. I am a 26 year old female with both...

I was basically you when I was 18. I didn't do my treatments, didn't take my pills,. didn't watch my sugar (I have CFRD), didn't do what my doctors told me to do. The way I looked at it was "I feel fine, I don't need to do that, I will be fine" Unfortunately I couldn't have been more wrong...

I completely understand how you feel. It is hard to know how to handle the whole relationship thing when you have a serious illness like CF. There are so many ups and down to this disease and it can be so unpredictable. I think one of the most important things you have to keep in mind is you...

I completely understand that you would be scared right now of an uncertain future but rest assured if your child does have CF you have a wonderful CF community behind you support you through everything. I am 26 years old and have both CF and CFRD (cystic fibrosis related diabetes). I live an...

Has anyone ever heard of a person with CF having a therapy dog? I have been thinking about getting one for a while and I'm not sure if I would qualify. I have been doing a lot of research on it and one thing I was looking into is an emotional therapy dog. My anxiety has been getting really...