Search results

What is the best way to sterilize your nebulizer pieces (the mouth pieces and the pieces the meds go into)? I usually just put them in hot water for an hour then rinse them off but I am finding that they don't seem very clean even when I do that. Should I be using a special kind of soap or...

Now that I have finally found a job (31 interviews later... being a new college grad really sucks) I need to turn my attention to taking better care of myself. I hate to admit it but during this long drawn out job hunting process I have neglected my health. I have been doing much better with...

I was just curious if anyone has heard of someone having both CF and asthma at the same time? I had my double lung transplant 3 years ago this September and within the last couple of months I have been experiencing these strange fits of real shortness of breath all of a sudden. They last for...

Is anyone else on any type of sleep medication? If so what kind and how much? I am having so much trouble sleeping as of late. I don't know if it is stress I don't know if my body is just being funky but I am completely exhausted and I have been missing my workouts just cause I am so...

I have been out of college now for a little bit and I am desperately searching for a job. I live in California and have decided to go back into the hospitality/restaurant industry because that's where I have the most experience however finding a job has been much much more difficult than I ever...

I am a little embarrassed to talk about this but I am learning that it is better to talk about whats going on rather then keep things inside, that has been the crux of my problems for years. I have had cystic fibrosis since I was born. I was diagnosed with cystic fibrosis related diabetes when...

Has anyone ever heard of a person with CF having a therapy dog? I have been thinking about getting one for a while and I'm not sure if I would qualify. I have been doing a lot of research on it and one thing I was looking into is an emotional therapy dog. My anxiety has been getting really...

I am in need of some guidance and inspiration tonight. I am a month away from finally graduating college with a full degree (after 8 years of being in school and many withdrawls due to being sick) and I am finding that I am hitting a mental wall. I don't know if its depression, I don't know if...

I will be graduating college in May (FINALLY) and I am starting the process of working on my resume and cover letters to start applying for a part time job. I am looking for any work I can get but I am wondering if during the interview process if I have to disclose that I have CF and have had a...

Yes I know its a fun topic to talk about but I was wondering what people are taking to prevent gas. I have had SO SO SO much gas over the past month and my docs aren't exactly sure what to do. I am on simethicone and of course pancreatic enzymes before I eat and a few other things and I'm...

Does anyone have any suggestions on how I can stop drinking soda? I have Cystic Fibrosis Related Type One Diabetes and soda is the worst thing for me but I feel like I am addicted to the sugar. I am trying to get my Hymoglobin A1C down to improve my health and I need all the help I can get. Thanks

Today I went to the doctor and he told me I have a lot of nasal polyps. He said he wants to treat them medically at first but if they don't go away in two months then I'll have to get nasal surgery. Has anyone else experienced this or had the surgery before? Does it help improve your...

Today I went to the gym I found that I was weezing a lot when I was on the treadmill. I am usually able to do one to two miles at a quick walk but today I had to stop at one mile cause I was getting a little worried about how much weezing I was doing. Has anyone tried doing a treatment before...

I am just curious what everyone here does for work and if they find what they do enjoyable? Do you find balancing work and having CF difficult? I haven't been back to work since my transplant 2 1/2 years ago and I'm about to start looking for work again. Any tips or tricks on finding...

Trying to follow my dreams seems to be getting harder and harder and I don't know what to do. I honestly feel like giving up. I am graduating in May and I'm trying to figure out what I'm going to be doing for the rest of my life and everything I want to do seems to get rejected. I originally...

Has anyones doctor said anything about having or working with animals and having CF? I know we have compromised immune systems and we have to be careful but I'm not sure what the rules are for us. Does anyone on this forum have CF and work with animals? Any further information you could give...

What does everyone elses doctors say about having/working with animals? I am under the impression that if you have had a transplant before than you can not clean out liter boxes and you can not be around birds. Other than that we are fine, especially if you are further out from your...

I feel like I am having some sort of mid twenties life crisis and I could really use some help. I am 26 years old and I am about to graduate college in May with a degree in Anthropology (which I have learned a little to late is basically a completely useless degree). Originally I wanted to go...

I have been on antibiotics now for about a week and I am still feeling pretty awful. I'm not sure if I should call my transplant team or not. When do you call your doctor after not feeling good for a certain period of time? I'm debating if I should go to the ER or not to get a chest x-ray...

My GI symptoms have been getting worse and worse as of late. My doctors just switched my enzymes but I think there is something more I could be doing. I have been doing some research and have seen that more people than we realize are alergic to gluten. Has anyone with CF tried going with a...