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I'm just checking to see what everyone else's experience was flying with the vest machine in tow. It is for my 3 yr old, and wonder what obstacles I might face with TSA or the airport. I will be flying with my 3 and 5 yr old so I need to be prepared on what to expect.

Just checking how many have dealt with their kiddos having a cholecystectomy?? My 3 y/o son had his gall bladder removed at the end if October after having many issues eating. Biopsy showed chronic inflammation. Surgeon said this was common with CF kiddos. since surgery he is having some biliary...

So my son started using "the vest" a little over a week ago. He is not a fan by the way. My insurance companies approval dept and medical director denied the claim stating that it is unsafe for a child of his age and had not been proven to really make a difference. It is only recommend for...

My 2 yr old son started pancreatic enzymes about a week and a half ago and not much difference yet. His stools arent every day now but when he does go, it is a huge amount and fills his pull up. They aren't as foul as before, but still pretty stinky. He takes them 4 times a day. Do they take a...

As I understood it, my 2 yr old son was diagnosed with CFTR and not referenced as "CF". Is there a difference or is he essentially now diagnosed with CF? I was told that he had 3 genes with polymorphisms of CFTR that would all together with his symptoms and testing diagnosis him as this. Anyone...