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Wow... I've looked into information before on my own but it seems there is so much still to find out. I took Fred's advice and got a little vibrating handheld massage thing and it seemed to help her clear quite a bit more than usual. There's been no recurrence of blood since last Thursday and...

Again, I want to thank you all so much for you responses. Last night it was really overwhelming for me to hear her cough through the night again and it was the first time she coughed any blood at all so I was completely distraught. Her fever has come down and she's not producing blood today...

In terms of vitamins we are using a variety of supplements as well as her natural diet consisting of plenty of sea vegetables that are rich in most vitamins and minerals. We haven't done much in terms of "clapping" or vibratory vests, but our physician has said the sound of her breathing is...

Thank you Alexandra. That's a lot of information to swallow at once but it looks like very useful information coming from Europe since the situation looks closer to what I face in Japan than most of the information I have found online focussed on the US.

My daughter is 5. She'll be starting Grade 1 this coming April. (She also has an older sister currently in Grade 2 that does not have CF). Her eating is a real concern for us as well because she's fairly stubborn with foods she will and won't eat at any given time and takes a long time to eat...

Hi Fred. That's great information. I'll look into one of those little massage things. Yes we are on the national insurance plan. We live in Nagoya, and as a child pretty much everything has been covered for us. We did buy our nebulizer ourselves but all hospital stays and medicine has been...

I don't know about discomfort after eating. I will ask her again in the morning. She's been complaining about chest and and back pain the last day or so, but I had assumed it was related to coughing. Her appetite hasn't been very good the last couple days though so I will ask.

Thanks for the responses. I just woke up. It's 3am here now. She's coughing and clearing.i did mean a nebulizer. I apologize for using the wrong terminology because everything is in two languages. We don't have a "vest". Can you give me a link for a website with information that I can provide...

I have tried several times to start this message. Apologies for any disorganization. I am a Caucasian canadian by birth, and my wife is Japanese. We live in Japan. I have heard that as a genetic profile, CF is rare in Japan, with possibly only 16 people or so in the whole country. My daughter...