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Suggestion This sounds like a question for your care team if you have not already asked. Your care team should be informed of this challenge your daughter is having.

There are over 1800 known genetic mutations. Most genetic panels include less that 100. You might want to ask your son's CF doctors about CFTR Related Metabolic Syndrome. Some people who fit this diagnosis are often treated in the same way and have great relief from their symptoms. Good luck!