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Cory doctor is very concerned on Cory using Colistin IV at home. Has anyone had Colistin as one of your home IV's and do you know what dose?

Cory was admitted on Tuesday and quickly transferred to critical care. He is on Bi-pap ad constant monitoring where the are having trouble keeping his heart rate low. Currently 130-150. He is in a lot of pain right now. X-rays have gotten worse from Tuesday to today but nothing much is...

Cory has a port several years ago and I never had any problems accessing his port. Most often, on the first attempt. He now has a new port (only been accessed 1 other time). We went to change the needle today and when we went to reaccess we were having horrible success. First we would get no...

How far is your CF clinic and how often do you go?

I needed a new topic. Your question was "what about CF Dad". In my book, you get one of the highest ranks. A father that shares equally in the care, information for the fight, and the involvement is highly respected. I say this in speaking of my opinion. Cory's dad never did one...

For those of you on Oxygen, what do use for portable oxygen? Are you on it 24/7 or just night time.

So Cory has a history of nose bleeds although usually sinus related. Cory has had so many sinus issues he knows when they are acting up. (dry, full, polyps). The last 3-4 days his nose has been bleeding everytime he gets into a coughing spell. He does feel like it is sinus related. Any ideas?

For those ofyou that use oxygen at home or have it available for home use, how did you know that it was needed?

The Cystic Fibrosis Institute will be hosting the 2nd annual winter retreat. It will be held at the Glen Club in Glenview, Illinois Some keynote speakers are Foster Cline( family dynamics) and Ron an bar( self hypnosis) The conference will be held on Febuary 10th from 8am-4:30pm If you are...

Cory has been having a lot of discomfort with PICC lines lately. His arm aches through the entire course of IV's. He had a port for 7 years although a little over a year ago, it developed an infection in it and it had to come out. He has never had another one in because he really doesn't want...