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Just wanted to get a feel on how common is it for your centers to want to do a bronchoscopy to see what is (or could be) growing in lungs? It use to be fairly common when my son was younger never had any results from them, so I started to refuse them. Now they are wanting to do one on...

It has been suggested to my son that we start the evaluation for transplant. Does anyone have any experience with centers in Texas. Any information would be appreciated. Thanks, Mom to 3, 2 with CF

How often do you (especially teen-agers) go in for routine tune-ups? Mom of 3; 2 w/CF 1 wo/CF

How often do you (teenagers especially) go in for routine tune-ups?

My son justed turned 15 and is having terrible sinus issues. He had issues anout 5 years ago and has had three surgeries. Surgeries were to clean out, open up and remove polyps. These surgeries were very tramadic for him, even the ENT Dr questioned if it was worth it. Well he had a couple a...

It's me again and trying to make the best of things with my teenager. He is 14 and has had a g-tube Mikey button since he was 5. For the first time in his life he is finally above the 25% in weight. Now he wants to take the g-tube out. I can imagine what his doctors and nutritionlist will...

I need to ask your opinions and solutions. I have 2 children with Cf 9 yr old girl and 14 yr old boy. They are very complient with their med's and breathing treatments we just work around life. Here is my problem my 14 year old is headed off for a trip 5 days without us; Just his peers and...

You would think that after 13 years of this I'd get use to it, but I'm not. I'm so frustrated. Does anybody else get frustrated that they can't ever second guess the doctor's at clinic visits? We had clinic yesterday (250 mile one way trip). I don't know how many times we gone up with the...