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so we met with our pulmonologist Monday and he has said our baby has CRMS and the next step would be a full genetic sequencing( we know she has one copy of deltaf508 and two intermediate sweat tests but no symptoms) and check ups, then a repeat sweat test at 6 months old. He said he was...

my husband and I are in diagnoses limbo for our daughter. she is 7 weeks old, no symptoms but two intermediate sweat tests and 1 copy of deltaf508 gene identified so we are waiting on more testing. However, if she is diagnosed we have talked about moving near the best CF center we can and I...

I am new to this website and I am a mother of a 7 week old baby girl that has not been diagnosed with CF but we have been going through lots of testing. This all started when her newborn screen came back abnormal so we were sent for a sweat test. her first sweat test was at 4 weeks old and was...