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Hi, thanks everyone for your thoughts so far. It sounds like maybe I should plan to go to the clinic once a year, and I guess I probably grit my teeth and bear that much. I do plan to have my pulmonologist do quarterly sputum cultures for the full range of CF bugs as well as spirometry, and I...

So I was diagnosed with cystic fibrosis in December at 28, primarily because my brother was diagnosed. I have very minor symptoms (cough up a little goo daily, but no persistent cough, etc). To get diagnosed, I had to go to a pulmonologist outside of my city's only adult CF clinic, as they will...

Thanks everyone. I am feeling better this morning, the panic seems to come in waves. I've had the sweat chloride test (which was borderline) and genetic test, so I know my mutations and all that. You are right that one of my mutations is possibly going to get new drug approval this year. I have...

Hi all, i was diagnosed with CF in December at age 28. I was diagnosed because a family member was diagnosed. Since then, I am still waiting to see a CF clinic- in the meantime, my pulmonologist has given mixed and unreliable info, so I'm just trying to be patient and wait to get all the info...