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My daughter finished 28 days on Tobi at the end of July. When the nurse called me with the culture results and instructions for Tobi/Cipro, I specifically asked when we should return for a repeat throat culture. The nurse told me to wait about a month, give them a call, and they would have us...

My 6-year old is in the middle of a 28-day course of Tobi and Cipro for pseudomonas. About a week ago, we noticed her tongue is brown! I called her CF clinic and they said they have never seen this before as a side effect to either Tobi or Cipro. They even checked with a pharmacist about it...

My 6-year old was admitted for the first time two weeks ago and we are finishing up iv antibiotics at home. I have many questions!! Has your child ever been admitted at a time when they did not appear to be having any problems? We were very surprised at the doctor's recommendation to...

I am getting differing information from three sources re: availability and when to get the seasonal flu shot for my daughter (age 5 w/cf) Our regular CF Clinic tells me they are already giving the seasonal flu shot. I know from my experience with them that if we had an appt in October, we...

For those with young children who use the vest, could you please enlighten me a bit? Forgive my ignorance and perhaps these are silly questions, but I am very curious just how beneficial using the vest would be for my 4-year old right now when she isn't coughing at all and appears to have no...

I'm looking for anyone who has kids that treat at CHM? If you do, would you please PM me? I'd like to find out about your care there and whether you have treated elsewhere. Thanks! Sandra

At another board I saw a post with this link about a 13-year old girl with cf who passed away over the weekend. <a target=_blank class=ftalternatingbarlinklarge href="http://www.santacruzsentinel.com/archive/2007/June/17/local/stories/01local.htm...

This is my second year doing Great Strides. Last year we were new to it so we did not take our daughter with CF. I would like to take her this year and asked our CF doc for her opinion. Her response was that she did not want to comment one way or the other. Big help that was!! She basically...

Our daughter was diagnosed in November 2005 at age 18 months. The vest was mentioned in one of our first CF clinic visits as "something she will probably get." We are now approaching a year since diagnosis and there has yet to be any further mention of getting a vest. So, I am now wondering...