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He had RSV last month and the ER ran a culture. The ped didn't run anything like that yesterday. I don't know much about the patting. We started him on the pregestimil after the test for that reason. The collection for the fat test was very difficult to do. The samples needed to be...

Another update So Cricket has another respiratory infection. "Wheezy bronchitis" His ped put him on an albuterol inhaler. The dr. suspects this to be a new virus and not related to the one he had last month. The results of his 72 fecal fat came back normal, which is "very confusing"...

No Ratatosk. No enzymes yet. I think they want to finish all the testing first since the enzymes would throw them off. Right now, we're on day three of the 72 hour collection for the fecal fat test. :rolleyes: Someone needs to come up with a better collection method than saran wrap in a...

Hi CFParent2 We didn't have the newborn screen because our son was born at home with midwife assistance. They recently took blood for a basic genetic screen. We haven't gotten the results back yet Small update: We just got the results back for the Chymotrypsin test and he had a normal...

I hope you also get some definitive answers. Best wishes to you.

Thank you so much Ratatosk. Your husband's insight is such an important thing to remember. It's hard sometimes because Drs can make you feel like your crazy when you don't exactly see eye to eye with them. I will try to keep your husband's words in mind if i start to feel as if they are being...

Thank you Justinsmama. I am so grateful. Your family, and all of our children, will be in my own thoughts and prayers. I'll be around to share what we discover. Maybe it might help someone else dealing with a similarly confusing set of issues.

It's been a crazy day of running around but i had to get on here and share an update. We met with a Dr. at the CF Center. She took a look at his records, did an exam, and asked us a lot of questions. She confirmed that he's been recovering really well since his bout with the rsv last week...

Thank you. I've never heard of ILEX. Maybe we can order some online. We've been using A&D and Mylanta for when his poop seems really acidic. It works ok but it's not ideal. i welcome anything that will make him more comfortable. And thank you for the advice. I cannot imagine the level...

Yep, Terrible smelling. You can definitely see undigested food when he eats something with any substance. When he eats pureed foods it is either very thick, sticky and dark or more runny and yellow green and it does smell very bad for a baby, with the dark smelling worse. For the first months...

What a hard journey to diagnosis. I'm sorry your little guy went through all of that. I'm so glad you finally got some answers and that he is feeling better. Our reflux issue isn't that severe (poor little thing) but i do agree it all sounds very familiar. Thank you for the encouragement...

Thank you so much for the replies. I appreciate the warm reception. As i'm sure you all understand, we're under quite a bit of stress. I know the location of the local hospital that has a CF Center. I made some calls today trying to figure out the process for transferring his care there...

Hello everyone. We're currently going through testing. Our son just turned 7 months old and has been steadily dropping down the growth charts in weight since birth. He began at the 90th in weight and height and is now nearly 100% for height and has dropped to the 10th% for weight in spite...