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MAC specialist is definitely critical. The Dr that he sees is part of an infectious disease team. His CF Dr was adamant about finding someone, just because it is fairly rare and he hasn't had enough exposure to it to know exactly which steps to take.

My son, also 12, has Mac. Last May was his first time in the hospital also, at the time his lung function had just gotten too low & he hadn't been gaining weight so we decided it was time. He doesn't cough anything up so they did a bronchoscopy to find out what might be causing this. That's...

I have the same problem with the vest. We just shove it off to the side. My son is 12 & doesn't want to get it out & put it away every time. I do try to at least put it back in the roller bag that came with it so that it's not just out all over the place. The nebulizer is on the floor next...

I've noticed a couple of you say that you had tightness in your chest, I think it was after the Amikacin? My son has started to have chest pains recently and I'm wondering if it's due to that. He's been on treatment for 2 months now and never said a thing about it before. 2 weeks ago he went...

My son was diagnosed at almost 7, he's now almost 12. We still argue about having to do treatments daily & I have to remind him daily to take his enzymes. I feel like this is a normal part of their life cycle. They are going through some crazy things hormonally & add cf on to of that & it...

My son, 11 years old with CF, was diagnosed with m.abscessus over the summer. He goes to the specialist in Tyler!! We live in Houston but actually moved away from Tyler about 2 1/2 years ago, we were stunned when his specialist in Houston told us the top Dr is in Tyler. We were told that Dr...

My son is also 11 and has CF. We live on the west side of Houston in Katy. I grew up here but we moved away shortly after he was born (had not been diagnosed) and then moved back 2 years ago (had been diagnosed for 2 years). He has never had any problems here, in fact I feel that he's doing...