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New CF vitamin DEKAs
Is the taste any better? The ADEKS make my child nauseous. They even smell horrible! -
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terrible adhesive allergy, possible iodine allergy connection?
My daughter also had terrible skin reactions which made clean-outs very uncomfortable. We did all kinds of allergy testing on her for the topical solutions used such as beta dine, iodine, alcohol, etc. We determined it was a contact allergy/eczema from the cheap dressings that hospitals used... -
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Orkambi Journey with 19 y/o Allan Diagnosed at 4 months
Diet is extremely important with CFers as I'm sure your son is aware at 19 years old. He will need to accept that eating is medically necessarily, not just to assuage appetite. My child is 17 and started Orkambi 4 days ago. All side-effects expected have been experienced so far. It is... -
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Marriage
I would put Jamie's medical needs above all else. If it means having a symbolic ceremony with close friends and family to "publicly commit to each other" in order to maintain her Medicaid/Medicare insurance benefits I would postpone marriage at this point in time. If you love each other and...