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i was wondering if anybody else experienced what I have. so my prior auth. didn't go through in time and I had a 2 week lapse in orkambi. I was on orkambi for year and half not missing a single dose. then I go two weeks without and once I started it back I had really bad shortness of breath and...

Two delicious spoon fulls of peanut butter, 30 grams of fat/protein

i also went through this years back, im 30 and have cf/diabetes/lots of other crap cause of cf, but have not needed a transplant yet but i have come close my fev1 is coming back up with orkambi. But i also was on disability and it is hard, really hard. I went to school and got my Air frame and...

i also had issues after a few weeks on orkambi. it seemed like i wasn't taking enough "eating pills" as i refer to them as, or almost like i missed a dose, (which i never do) so i increased mine to 7 with meals instead of six. Mine are the zen-pep 25000. my doc also did not want to increase but...

Hello everybody, I have not been on here in a while but i got my Orkambi today!!! so if you want to follow my journey or have any questions subscribe to my YouTube channel. Just search Bo Russell channel, or Orkambi journey.