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Bill, Yes. I am going to an 'approved' CF Center and I am being treated by a CF Pulmonary Specialist. However, that doesn't mean they know everything or are experts in all things, they are human after all. They tend to be very good as long as everything is a common CF issue with text book...

Invasive Aspergilliosis (IA) is a different form of aspergillus than most CF Patients aquire or are familiar with. For most CF Patients, they get what is called non-invasive aspergillus. It typically just sits in their system and shows up on cultures and doesn't do much. Occasionally it will...

Initially when they told me they were testing for invasive aspergilliosis, they told me they would switch me over to an infectious disease doctor if it came back positive ... but then they didn't. At my current clinic/hospital, who my doctor is changes all the time and each doctor is able...

Thank you for your responses. No worries about things being slow on the weekend, or slow at all. I know getting any kind of response on a forum can be a long shot, and have managed expectations. Part of why I am posting is also because my doctors have stumbled a lot in the diagnosis process...

My doctor has diagnosed me with a type of aspergillosis infection called 'invasive aspergillosis'. What I'm reading on the internet for that form of aspergillosis, is that it is very bad. That it is very difficult to treat and has a 50 to 80% mortality rate. Also, my doctor has me on oral...