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some info, hope this helps... I'm not sure how these resources would apply to your daughter. http://www.ncbi.nlm.nih.gov/pubmed/11101688 http://www.ncbi.nlm.nih.gov/pubmed/16189704 http://www.cftr2.org/browse.php http://www.genet.sickkids.on.ca/cftr/SearchPage.html Take care and God bless, Rich