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Hi Deb Well currently Bree is at the children's hospital so I do not know if a cf clinic has a patient advocate or not. I am also in Canada. What my own Doctor has advised is that I call the society for physicans and surgeons as well we have that where I am located. It sounds as though I am in...

Renee I am sorry for all that you went through. Good for you standing up and saying hey this isn't right get the Doctor on the phone. My 3 year old is in the hospital has been there for a week now and I know that the nurses think I am the parent from hell, I look at it from this point. I am my...

This is for Debs2girls Scream, yell, cry but get to the bottom of this. I have requested my daughter medically file as I am sending to another hospital per my own Doctors advise. I also went to the patient advocate to set up a meeting with all the Doctors involved with Bree's care. My therory...

Hi, Time for yet another update. I leave work and get to hospital at 6pm, Bree is lethargic crying in pain and sweating, she is not a happy girl. Her lipase was normal yesterday at 43, well her dad and I know her symptoms well and when she complains that the light hurts her eyes and wants all...

Reply to post Bree is at childrens hospital in Winnipeg Canada her sweat test was done at the CF clinic there and we are presently waiting for the blood results. Thanks

Good Morning Bree has just left to go back to the hospital. She had a really rough night. she kept crying in her sleep, her stomach hurt, her I.V hurt. The Doctor had said that she could come home if her lipase stayed normal and she was able to tolerate real food with no pain, well I guess she...

Well it is now early Friday morning. Currently Bree is sleeping with her Dad and her little brother Will(2), the hospital let her go on a overnight pass. Her sweat test came back at 38 so far no CF. She had a CT scan done today which shows a blockage as well as all her bile ducts are inflammed...

Thank you all for your comments. Bree is still in the hospital under going every imaginable test tomorrow she will have the sweat test. She is still NPO so all she gets is broth and juice so as you can imagine she is miserable. I am home tonight with my 2 yr old who is sick with a cold, at...

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My beautiful 3 yr old Breanna has been sick for almost a year, after being told time and time again that all she had was a virus I finally flipped and demanded that they do something. I was in agony watching her scream in pain and could not do anything to help her. Well, finally I guess to shut...