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I have been following this drug trial for a while now and today this is the email I received and thought I would post it in case people hadn't yet heard. "Dear Friend, We have exciting news. Earlier today, we announced promising results from an early Phase 2 study of VX-770, an oral compound...

Here is a question for those who have CF but also for the parents of those with CF. How do you feel about the progression to now have annual CT scans performed? As a mother I am quite worried about the long term effects of these procedures and I am seriously contemplating (unless I can locate...