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I have read a few posts in the past discussing the severity of one's specific mutation, the classification of the mutation & something with the alleles. Although I know that does not totally dictate the severity of the disease, it is very interesting. Does anyone have a good link or info on any...

Erin has never really had a baseline cough until the past 6 months. She started pulmozyme in March 2006 and has been doing GREAT (knock on wood). We are able to "catch" a flare-up it seems and do extra therapy/asthma action plan/preventative antibiotics. Well this has happened just a couple of...

Our pulm nurse called a few weeks ago & told us that Erin's liver enzymes were a little elevated & we would have watch it to make sure that it doesn't mean anything. She was on bactrim for an ear infection when her blood was drawn. I am a little worried, but going to wait until the next blood...

Hello everyone! It has been awhile since I have been online...busy, it seems. Anyway, Erin (4 w/cf) is getting a feeding tube soon & I wanted to know what to expect with her recovery. Any comments from CFers or parents who took care of them afterward. Thanks!!

I just received an email from our local chapter about a search engine that donates $$ to charity with each search. Go to www.goodsearch.com and follow the instructions (no personal info needed). I set it as my homepage and the CFF - Bethesda, MD chapter is the only one listed. I don't care which...