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Does anyone know the backstory for this CNN link? I posted this on the Families portion of the forum as well. <a...

Anyone know the background story for this link from CNN? <a href="http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12">http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12</a>

Hello - I just went back to work this past week (son is 12 weeks), and I am having trouble maintaining a high enough volume of milk while pumping.  He has never been a frequent eater - about 6-7 times/ 24 hours.  So now that I am at work, I only have 1-2 nursing sessions with him per 24 hours. ...

My dr. recommended doing 2-weeks of inhaled TOBI as a preventive before my husband and I do our first IUI. Well, due to delays in getting the TOBI in the mail, I am now 2 days before IUI (pending ultrasound/ follicles). My DH and I are wondering if we shouldn't go ahead w/ the TOBI since I...

My bro (age 34) is thinking about getting a second opinion in WI. We have seen Dr. Biller for years, and we really like her, but she has openly said she doesn't know what is wrong w/ my brother and how to treat him in order to get him healthy again. He has spent the past 18 months feeling...

I just read serendipity's post which was really interesting, so from the opposite end... how many months of TTC before moving to IUI? I guess I am hoping for others' experiences who have moved onto IUI, but also just opinions on when you would personally draw the line in the sand and move to...

Has anyone else experience mid-cycle spotting? I have this basically every month. My husband and I are about 5 months into TTC. I can not find much info online relative to mid-cycle spotting and if it potentially relates to hormone levels, etc. This month was my first month really...

On the Novartis website it states the TOBI should be taken with a particular Pari Neb cup and certain type of air compressor. My traveling pari air compressor is currently not putting out the right air amount - it was checked by my respiratory therapist this week. I was told to start TOBI...

Hey All, My brother has tons of scandi shakes if anyone is interested. He used to have troubles gaining weight and used to supplement with these shakes. He is at a great weight now, and almost a bit chubby. My other bro and I don't need the extra weight. I believe he has over 50 shakes so if...

Hey All, My brother has tons of scandi shakes if anyone is interested. He used to have troubles gaining weight and used to supplement with these shakes. He is at a great weight now, and almost a bit chubby. My other bro and I don't need the extra weight. I believe he has over 50 shakes so...

Dr. Beall, PRes and CEO of the CFF is speaking.

Just going to Phase I, but nice to always here encouraging news. On a related note, has the median life expectancy increased? The article lists it as 38.6. The CFF last updated it in 2005 and it was 35.6. Just curious if this is true or a typo. New Therapy To Alleviate The Symptoms Of...

Rockline Industries is recalling wet wipes sold under various names at Wal-Mart and Sam's Club stores from Aug. 21 to Nov. 17 because they could contain a bacteria known as Burkholderia cepacia (B. cepacia). People with weakened immune systems or chronic lung diseases, particularly cystic...

Rockline Industries is recalling wet wipes sold under various names at Wal-Mart and Sam's Club stores from Aug. 21 to Nov. 17 because they could contain a bacteria known as Burkholderia cepacia (B. cepacia). People with weakened immune systems or chronic lung diseases, particularly cystic...

I was just reading the Cepacia thread and I was reading Diane's comment about contracting cepacia after a sinus surgery..... just curious, how many of you picked up a new bug after a surgery/ non-iv hospital visit? I may need my second sinus surgery within the next year and now I am a bit...

I don't know this man, and unfortunately he has passed away. I wanted to post it out of respect for him and the work that he and his mother drove to complete. I guess his one statement just stuck with me this morning as I read this article and I wanted others with CF to read it as well as an...

Back to my exercise program now that we have less daylight. I am training for the Hustle Up the Hancock for Feb. 2007. I did 15 minutes on the moving stairs - something like a stairmaster, but its an actual set of stairs that rotates through. I completed 74 floors within that time. Then I...

I haven't posted very often lately, but I check the site daily.  I wanted to post because tomorrow is my birthday.  .  It will be my 29th year here and I keep hoping to stay behind the median CF curve.

I just received this e-mail from the CFF. Always like to share great news. Something very impressive is the fact that the age has increased over 5 years in less than 4 years. Please spread the word! Dear Friend of the CF Foundation, We are pleased to report that the median survival age of...