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I have been feeling kind of overwhelmed lately. I just started back to work part time subbing at school. I love the break that my mind has there. Like my focus switches to only what I'm doing there rather than all the things I have going on at home.... That being said, my daughter just cultured...

Well we arrived in Hawaii today and the vest and all our meds made it intact. We drove to a store and purchased a microwave for sterilization and this evening discovered we forgot to bring the neb cups. The only place I am used to getting them is at our cf clinic. Any suggestions???? Anyone...

Hi All! Just wanted to share some issues we've been having with all of you because I didn't know what was going on with my daughter for over a week and am now so thankful that we have some answers. She has had some excruciating pain all over her body - she couldn't turn her neck, her fingers...

Hi everyone. My daughter cultured PA, after a year without it <img src="i/expressions/face-icon-small-sad.gif" border="0">..... We have been prescribed Cipro and Colistin. She has had Cipro in the past with no problems. This time around, however, it appears she is having an allergic reaction...

Hi all. I was wondering if you have any great gift ideas for children in the hospital? A friend in our local CF community is in the hospital - she's a 7 year old girl. I'd like to get a gift for her and for her mom while they are there.... What kinds of things have you guys received that have...

Hi Everyone! I have started my own business creating photo montages and DVD's for those who may be interested. The following is my web address: <a target=_blank class=ftalternatingbarlinklarge href="http://web.me.com/mltoliver/Memory_Lane/Home.html...

Hi everyone. my daughter is 5 and treats with Dr. Milla at Stanford. We really like our center and our treatment. We recently began treating at Stanford again and are grateful for the team. I'm always researching treatment and what I can do better or work on. I was wondering if any of you...

I finally finished our 2009 Great Strides video - better late than never! Here is the link if you want to check it out! <a target=_blank class=ftalternatingbarlinklarge href="http://www.vimeo.com/3959870 ">http://www.vimeo.com/3959870 </a>

We got our new Devilbiss air compressor and have been doing TOBI with it. It has been 3 days. It takes us about 30 minutes for a 5ml ampule....is that right? All equipment pieces are new including the PARI nebulizer and the air compressor..... How long does it take for you guys?

Hi. I am about to purchase a devilbiss air compressor and was wondering if any of you know the difference between the 5650D and the 5650H? Thanks!

I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst. I thought it would be helpful if you could post your/your child's age and what meds your taking? My daughter is 5, DDF508 and...

Does anyone have any information or idea how patients in Europe are doing vs. the States?

Does anyone have any information or access to information on how patients in Europe are doing compared to the States?

Hi. I was wondering if any of you had any information or have been trained on Dr. Warwick's "improved coughing technique?" I'd love to hear from anyone who treats at a center that teaches this with thoughts on it, how to do it or where I can get more info on it. Thanks!

Hi. I was wondering if any of you had any information or have been trained on Dr. Warwick's "improved coughing technique?" I'd love to hear from anyone who treats at a center that teaches this with thoughts on it, how to do it or where I can get more info on it. Thanks!

Hi. I was doing some research and was wondering what some of you think of the centers you treat at and what you have heard is the most "cutting edge" center around.... Any thoughts or information or links would be appreciated!

Hi. I am looking for an air compressor that will cut down on treatment times for us. I was researching the mobileaire, but wanted some feedback. What air compressors do you all use for pulmozyme and/or Tobi and how long are the treatments taking? Any input would be appreciated!

I have a 5 year old who just won't gain weight. we've tried cyproheptadine - didn't work. We are talking about moving on to a G-tube, but I wanted to try everything else first. I read a little about megace on some of the posts. Has anyone tried this with their smaller children? Did it seem to...

What kinds of things do you all do to add calories and fat to your diets or your children's diets? I need serious help getting my 5 year old daughter to gain some weight!

We just got back from our gastro physician who made a great suggestion to us. My daugher LOVES saltine crackers...which have such low calories - of course - that's how it always is for us. Anyhow, she recommended taking the saltines and layering them on a baking sheet, drizzling them with...