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The page for the patient registry on the CFF site ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/PatientRegistry/">http://www.cff.org/LivingWithC...twork/PatientRegistry/</a> ) has been updated to say that "Data from 2005 will be...

The page for the patient registry on the CFF site ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/PatientRegistry/">http://www.cff.org/LivingWithC...twork/PatientRegistry/</a> ) has been updated to say that "Data from 2005 will be...

The page for the patient registry on the CFF site ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/PatientRegistry/">http://www.cff.org/LivingWithC...twork/PatientRegistry/</a> ) has been updated to say that "Data from 2005 will be...

I just had one! I was at the pharmacy picking up a med and as the girl range it up, she said, "wow.. i've never seen insurance save so much on a prescription (it was pulmozyme)." I replied that she should see Tobi and then turned to leave. At that moment the girl (well... 20something)...

I just had one! I was at the pharmacy picking up a med and as the girl range it up, she said, "wow.. i've never seen insurance save so much on a prescription (it was pulmozyme)." I replied that she should see Tobi and then turned to leave. At that moment the girl (well... 20something)...

I just had one! I was at the pharmacy picking up a med and as the girl range it up, she said, "wow.. i've never seen insurance save so much on a prescription (it was pulmozyme)." I replied that she should see Tobi and then turned to leave. At that moment the girl (well... 20something)...

The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge...

The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge...

The CFF website says the registry would be available in November 2006 (note: it's now December). This information is at: <a target=_blank class=ftalternatingbarlinklarge...

Lol.. I actually noticed the 20 posts before the second n!

Lol.. I actually noticed the 20 posts before the second n!

Lol.. I actually noticed the 20 posts before the second n!

Whoop!!! Happy Dance!!!

Whoop!!! Happy Dance!!!

Whoop!!! Happy Dance!!!

I've never made it into the three digits on total cholesterol. Not insanely low, but in the 90s. My poor husband who takes cholesterol medicine looked at my most recent blood work, looked at what I was eating and declared that i was definitely weird! On another note, the cholesterol meds...

I've never made it into the three digits on total cholesterol. Not insanely low, but in the 90s. My poor husband who takes cholesterol medicine looked at my most recent blood work, looked at what I was eating and declared that i was definitely weird! On another note, the cholesterol meds...

I've never made it into the three digits on total cholesterol. Not insanely low, but in the 90s. My poor husband who takes cholesterol medicine looked at my most recent blood work, looked at what I was eating and declared that i was definitely weird! On another note, the cholesterol meds...

Just curious, how often do people who have been clinically diagnosed as having CF (i'm guessing this normally means having two positive sweat tests, but I guess nasal differentials, sinus scans and other things could play in) produce no mutations when run through the ampry complete genetic...

Thought I'd add, I'd push for not only a cf genetic test, but one that checks for all known mutations versus a panel. There's good medical justification for this, with the link between borderline sweat levels and having even more rare mutations. Also, there is no reason to wait three months...