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I've heard a lot about the dangers of Cepacia and some mention of Pseudomonas.  Just how bad can Pseudomonas be?  What are the best practices for not getting Pseudomonas?  Does it spread easily?  What organs does it effect?  Are there various strains? Some bad...some not so bad?<br> <br> What's...

Is there any advantage to listing hospitals that might have Cepacia lurking around and where Docs/nurses/waiting rooms may not be making a best effort to adhere to the highest standards to prevent transmission?  I've heard that a clinic in Eastern Washington is treating two patients with Cepacia...

1) For example, my grandson has the CF mutation 1717-G>A which we assume probably came though my line.  Would this mean that some of my siblings, and my son would have the same 1717-G>A?  Or could it be the 508 strain just as easily?<br> <br> 2) My grandson has both the 1717-G>A and the delta...

I've offered to pay for CF tests for all my children (or their spouses) since I'm probably the carrier of a recessive gene that got passed to my son who has a CF baby.  Are these tests complicated blood tests? Expensive?  Thanks.<br> <br> Harvey

Please pardon the sensitive question but we're new to the CF scene and are learning all we can as fast as we can.  I'd heard that certain bacteria are worse for CF patients than others...and that if one CF patient happens to be fighting this bacteria...that its transmission to another CF kid...

Is sending  young CF children to day care just asking for trouble? Infections, etc?  What are suggested practices?<br> <br> Harvey

I've heard that mortality rates vary from hospital to hospital for CF patients and that this may be related to the cleanliness/training/conscientious that varying hospitals have. Sometimes it may be related to a particular cutting-edge doctor.  Anyone care to list the top 10 CF hospitals?  Top 5...

Do you have to go through a medical doctor to be tested to see if you're a CF carrier or have the recessive gene?  Or are there alternatives?  Did your medical pay for the tests?  Any suggestions on a good test lab or is this a choice your doctor makes?<br> <br>  Thanks.<br> <br> Harvey

Having just found out that I and my sister are apparent carriers of a recessive CF gene, how prevalent is it that other members of ones family are tested?  I'm encouraging my children to have genetic tests, as well as my other siblings. Some are more interested than others but perhaps it's just...

I just found out that I'm a recessive gene carrier of CF...I just had a grandson with CF...and I've had sinus/coughing problems all my life (I'm 62).  Is it unreasonable to think that I might have an extremely mild case of CF or is this totally unreasonable?<br> <br> Harvey