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It has been a while since I have posted on here. Life has gotten busy and we seem to be running in every which way. Liliana is struggling with 2 lung infections. But we are pushing through each day. She is also losing weight... :( Please keep us in your prayers. Here is an updated picture of...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

Hello to all. First of all everything is going very good. But she just started to have a bowel movement after each feeding. I called her dr. She told me to move up to a whole capsule creon5. We just moved up to 3/4 of a capsule just two weeks ago. This seems really fast. I was wondering about...

Hello Everyone, Hope all is well with everyone. Well today was the Dr's appointment with the CF team. Liliana is up to 12lbs 6oz!!!!! I'm so happy she is gaining so much weight, not only that she is also 23 inches long. The visit today went very good. They and we were happy. They did up...

I am new to CF. And I am also a new mom to a baby girl who was diagnosed with CF a month ago at 4months old. I was/am so scared for her. I knew/know nothing about CF. I have learn alot over the last month. And I have found this wonderful website. We have no family history of CF. So we had no...