Search results

  1. A

    Mutation Gene modifier

    The question about age and mutation got me thinking about my sons.  I had known that mutations alone could not give u a look into the symptoms and progression.  But I found a genetic test that looks to give u more info than just mutations.  It only cost about 125 dollars, and they said usually...
  2. A

    Sugar free diet or not?

    I have been thinking a lot about what my son eats and the diet that is pushed by his doctor.  They feel the more fat, the better.  Will say go to McDonalds, the more chicken nuggets the better.  Ho Hos, Great.  So I do this, and he is a great eater and in 75% of weight, 77 lb/35kg at 9, but the...
  3. A

    E-flow nebulizer

    We got an e-flow nebulizer about a month ago and just want to let people know how great it it.  It's so small, extremely quiet and runs on batteries, so u can take it on the go w/ you.  And an ampule of pulmozyme can be done in 2-3 mins.   It costs about 1,600 but we got it authorized through...
  4. A

    Vaccines for Pseudomonas aeruginosa

    I have heard that a vaccine for preventing Pseudo is now avail in Europe, but that it won't be avail here for at least 2 or 3 years, does anyone have any knowledge about this...this may sound extreme, but if I could  establish a contact I would go to Europe and make a family vacation out of it...
  5. A

    x

    x
Top