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  1. M

    My daughter gave birth to a healthy lil girl last monday 16th of November.

    I have a granddaughter, very exciting <img src="i/expressions/face-icon-small-smile.gif" border="0"> She was born vaginally through inducement and she was 3 weeks early. She was 5 pound 8 ounces and 48cm long with lots of black hair. My daughter fell pregnant in the natural way. Her main issues...
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    More juices found to affect drugs 'Effectiveness: Study

    TUESDAY, Aug. 19 (HealthDay News) -- Grapefruit juice, long known to boost the absorption of certain medications, isn't the only juice that doesn't mix well with drugs, according to the Canadian researcher who first identified the ill effects of grapefruit juice. Other common juices, including...
  3. M

    detoxing the liver

    Detoxifying the Liver Drinking carrot juice daily will help to detoxify the liver as will drinking Essiac Tea daily. Apart from being low cost and safe to use, Aloe Vera is the best natural way to induce phase II of the liver's detox pathway. Lemon & Extra Virgin Olive oil drink can be taken...
  4. M

    does anyone use a natural way to relieve pain? (plus other Questions)

    My daughter has just been diagnosed with liver disease (cirrhosis) She has been put on Ursofalk. and he mentioned to limit use of panadol. Does anyone have a natural way to relieve pain? also she is going to have the scan where they go into a tunnel (can't remember the name of it) has...
  5. M

    coughing up what looks like blue lint

    Lately for the last month and a half Kj has been cough up amongst her sputum, during a physio session, what looks like blue lint. it doesnt happen every physio though. It started off with 4 little blue dots. Then she has coughed up slightly larger ones every so often. Kj even coughed one up...
  6. M

    The WalkHaler

    <a target=_blank class=ftalternatingbarlinklarge href="http://american-allergy-supply.com/wh/walkhaler.htm ">http://american-allergy-supply.com/wh/walkhaler.htm </a> Just wanted to share this <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope Australia gets these in! Would...
  7. M

    Forgetful flushes

    I have had a sick feeling in my stomach today while waiting to get Kj's port flushed. Kj was in hospital 2 months ago, but we forgot to write her last flush down on the calender, well when I found her discharge papers and saw that date I nearly had a fit as it had been 2 months since her last...
  8. M

    Cryptopharma Cystic Fibrosis Inflammation Drug To Be Commercialised

    Cryptopharma Cystic Fibrosis Inflammation Drug To Be Commercialised - Targeting Inflammation Via Novel Mode Of Action Main Category: Cystic Fibrosis News Article Date: 11 Apr 2007 - 10:00 PDT Melbourne based biotechnology company Cryptopharma Pty Ltd announced that its inflammation drug...
  9. M

    Lady with CF has had 4 tranplants

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.mirror.co.uk/news/topstories/tm_method=full%26objectid=19122851%26siteid=89520-name_page.html ">http://www.mirror.co.uk/news/t...=89520-name_page.html </a> What an amazing lady. She had her kidney transplant whilst listening to an...
  10. M

    Joshua Jones

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/joshuajonesjj ">http://www.myspace.com/joshuajonesjj </a> found his site on myspace and thought I would share it <img src="i/expressions/face-icon-small-smile.gif" border="0"> A very talented young man.
  11. M

    Hospital beds

    Kj needed to be in hospital last monday but no beds available. I am still waiting to hear of one. They said maybe friday. It makes me soooo cross that she has to wait a whole week to get iv's. She has lost 2kg and has had a 10% drop in lung function. It is all sooooooo frustrating!!!!!!!!!!!!!!
  12. M

    Polyjoule powder

    Does anyone have any hints on stopping lumps from forming. I put it in my daughters juice and it goes lumpy. I don't want to put her off of drinking it.
  13. M

    when do you bring up the most mucous?

    Kj seems to not get much up in the morning but in the evening she brings up half a cup full. I thought that more mucous would come up in the morning as it has pooled in the lungs over night? What is normal? Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. M

    Mannitol

    I received a letter from clinic yesterday asking us to go in the trials. It is supposed to do similar things like the hypertonic saline. I just want to know about safety, effectiveness, side effects ect... She could get the drug or the placebo. would placebo just be a saline solution? I am...
  15. M

    Healing thoughts or prayers for Amber (beautifulsoul)

    "We received a call at 5:19 am from Pittsburgh Childrens Hospital, they have lungs awaiting Amber. We are getting things together and plan to fly Amber from Lunken by 7:30 am. Keep us in your prayers. We will update everyone when the transplant is complete." <a target=_blank...
  16. M

    Meconium illeus at birth

    I'm just wondering for those who had a bowel obstruction b4 and after birth. What gene do you have. Kayla's bowels perforated while she was in my stomach and was operated on the same day she was born. Her scar goes across her whole stomach. No lung involvement till 6yrs old. she is delta F508...
  17. M

    15 yr old girl with cf wanting to chat on msn

    My daughter Kayla would love to chat to other cfers about cf stuff. please pm me for her hotmail addy. She doesn't get to talk to other teens with cf much. So please add her <img src="i/expressions/face-icon-small-smile.gif" border="0">
  18. M

    Garlic and pseudomonas

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.medicalnewstoday.com/medicalnews.php?newsid=62309 ">http://www.medicalnewstoday.co...news.php?newsid=62309 </a> <a target=_blank class=ftalternatingbarlinklarge href="http://mic.sgmjournals.org/cgi/content/abstract/151/12/3873...
  19. M

    Bronchitol trials

    I took my daughter to clinic yesterday and her doc said she could do the bronchitol trial here in Australia, though she is trialling pulmozyme first. I was wondering if there is anyone who is participating in this trial (any country) as I would like more information on it, side effects ect...
  20. M

    For people who grow staph (not MRSA)

    I was wondering what types of medicines are used and what ones seem to work the best? Iv and oral. And are you on supplements, if so what kinds. Also are you on pulmozyme or Hypertonic saline? Sorry for all the questions, but my daughter is going to clinic on friday. Her staph never goes...
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