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Does anyone out there have a toddler with CFRD? My dd had a blood test (which was normal) and is sched for a urine analysis (if I can EVER get her to pee in the cup!) to test--she drinks ALL the time and is constantly asking for more to drink and urinates ALL the time!! We're working on potty...

so i posted a couple of weeks ago bc my dd's vest came (she's 2). yesterday we went to the clinic to be sure the vest fit, get the settings right, etc. we're only at 30% pressure for 10 minutes to start. got up this morning (empty belly) and sat with dd on my lap. she did GREAT with the...

we just got a vest from respirtech . . . my daughter was 2 in june. any advice for introducing it, getting her to love it, etc? she's great with her nebs (she did a full 20 minutes holding the nebulizer all by herself just yesterday), so i'm hoping with the right dvds she'll love it, right?

we are contemplating a move to alabama and i was wondering if anyone uses the care center at uab? we have a wonderful care center here that i will be sad to leave, so i'm looking for any stories (good or bad) that anyone may have about the center. thanks.

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

I'm toying with the idea of starting a foundation to provide funds to CF families to help with the cost of "extra" activities--program fees for swim team, soccer, gymnastics, dancing, etc--with the idea that these programs provide necessary treatment for those living with CF and they are often...

My daughter (17 months) was diagnosed with CF less than a month ago. My pregnancy screening indicated that I was most likely not a carrier, so this came as quite a shock. Both mutations have been identified in the expanded panel--one is the 508 (probably from her dad) and one is R1158X...