Search results

Hopefully we can put in some measures to combat the idiot spam behavior. Looking at it now.

Yes I think the possibilities to AI could be interesting for CF, especially in drug development and health prediction.

It's hard to say. Obviously some drugs still are efficacious long after the expiration date, but others don't do as well after. It's probably best to follow guidance but at the price Trikafta goes for, that is a difficult one to throw away.

Yes I agree. I know some have claimed that some essential oils can be anti-infective, especially when antibiotics become less effective over time. And you are correct, this should be done under the guidance of healthcare professionals.

Modulators have different effects on people. Some feel no side effects while others have difficult tolerating them. The main thing is to find the things that help you (Prescription drugs, supplements, therapies, etc) and be consistent, while being open minded to researching other things from...

From my daughter's experience when she was younger when she moved from Utah to Florida, it had no difference. However, I would not claim this is the same for everyone because I do not know. We did live in NC for awhile, and the CF clinic at UNC-Chapel Hill is excellent if you do not find the...

Looks like the donate link on the main page (cysticfibrosis.com) is broken. I will look at fixing this today. Thanks for the advise.

While it is probably a good thing to discuss this with your family, it might not be advisable in all cases. Fortunately people are more open to this than in years past. There are many ways to handle this, and it depends on many variables. All families are different. If doing so seems like a good...

Trikafta is a superior product. Orkambi seemed more like a pre-release version and Trikafta is much more refined with less side effects and better efficacy.

Hi @MissAlexsBP . I haven't heard anything about San Antonio but my daughter has gone to the Austin clinic for almost 9 years. It is reasonably good and has improved over the last 5 years. Not that you want drive 1.5 hours away, but if things aren't good in SA, then Austin is always an option.

The link still is not working

I think CF people have done very well in general with respect to COVID-19. My feeling is that most CF people/families have more awareness when it comes to avoiding infections, social distancing, etc. So adapting to COVID guidelines haven't been a new thing in a sense.

I think it should be fine. I don't see anything that requires a CFTR protein being involved in the vaccine, so I would think it should work on CF people the same way as non-CF people.

It's been a little over 3 years since we released our first product Indrepta in a joint project between Sharktank Research Foundation and Planetary Biosciences. It has been helpful to many people so far. We did a little crowdfunding a few months ago and are now in the process of creating a...

It really depends how much mucus you produce or not. Also, you might want to look at the AffloVest, as it is significantly quieter and you are not tethered to the vest apparatus.

Hi David, this is a test message to see if you received the private message. Thanks Jim

Hi Jeanne, this is a test for private messaging

Congratulations!!!

We upgraded from 4.2.2 to 4.2.5 vBulletin