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  1. W

    Genetic testing- how long does it generally take to get back

    In general, how long does it take to get the genetci testing back? We had it drawn 11 days ago but have no idea how long it will take to get back. Also, is it normal for the doctors to down play CF like symptoms?
  2. W

    Genetic testing- how long does it generally take to get back

    In general, how long does it take to get the genetci testing back? We had it drawn 11 days ago but have no idea how long it will take to get back. Also, is it normal for the doctors to down play CF like symptoms?
  3. W

    Genetic testing- how long does it generally take to get back

    In general, how long does it take to get the genetci testing back? We had it drawn 11 days ago but have no idea how long it will take to get back. Also, is it normal for the doctors to down play CF like symptoms?
  4. W

    frustration has hit an all time high!

    We finally made it into the ped pulmo md last week. Of course, we spent a lot of time going over my sons history. At the time, he had the sniffles due to a cold his twin gave him. Honestly, I cannot remember the last time his nose was runny. But that day it was drippy. MD perseverated on...
  5. W

    frustration has hit an all time high!

    We finally made it into the ped pulmo md last week. Of course, we spent a lot of time going over my sons history. At the time, he had the sniffles due to a cold his twin gave him. Honestly, I cannot remember the last time his nose was runny. But that day it was drippy. MD perseverated on...
  6. W

    frustration has hit an all time high!

    We finally made it into the ped pulmo md last week. Of course, we spent a lot of time going over my sons history. At the time, he had the sniffles due to a cold his twin gave him. Honestly, I cannot remember the last time his nose was runny. But that day it was drippy. MD perseverated on...
  7. W

    The Specialist Merry-Go-round

    After two borderline sweat tests, one negative, we are doing the Specialist Merry-Go-Round. My sons bone scan showed a two year growth delay but the Pediatric Endcronoglist feels it has nothing to do with growth hormone. He felt we needed to see the Ped. Pulm and GI. So to the Ped Pulm M.D...
  8. W

    The Specialist Merry-Go-round

    After two borderline sweat tests, one negative, we are doing the Specialist Merry-Go-Round. My sons bone scan showed a two year growth delay but the Pediatric Endcronoglist feels it has nothing to do with growth hormone. He felt we needed to see the Ped. Pulm and GI. So to the Ped Pulm M.D...
  9. W

    The Specialist Merry-Go-round

    After two borderline sweat tests, one negative, we are doing the Specialist Merry-Go-Round. My sons bone scan showed a two year growth delay but the Pediatric Endcronoglist feels it has nothing to do with growth hormone. He felt we needed to see the Ped. Pulm and GI. So to the Ped Pulm M.D...
  10. W

    sweat test discrepancy

    My son has now had four sweat tests- the first score was 56, second 54, third couldn't get enough sweat and finally barely enough sweat and a 25. The final test was done at another hospital. So here is my question- we gave a sighed of relief when we got the news of 25, which lab is wrong- the...
  11. W

    sweat test discrepancy

    My son has now had four sweat tests- the first score was 56, second 54, third couldn't get enough sweat and finally barely enough sweat and a 25. The final test was done at another hospital. So here is my question- we gave a sighed of relief when we got the news of 25, which lab is wrong- the...
  12. W

    sweat test discrepancy

    My son has now had four sweat tests- the first score was 56, second 54, third couldn't get enough sweat and finally barely enough sweat and a 25. The final test was done at another hospital. So here is my question- we gave a sighed of relief when we got the news of 25, which lab is wrong- the...
  13. W

    Kaitlyn is in the hospital

    There should be a snack pantry on the floor some place where you can store snacks in the refrigerator. Usually they have jello, pudding, pop tarts, soups that you can give her. Make sure if you bring food in to label it with her name, room number and date. Hospitals and healthcare facitilies...
  14. W

    Kaitlyn is in the hospital

    There should be a snack pantry on the floor some place where you can store snacks in the refrigerator. Usually they have jello, pudding, pop tarts, soups that you can give her. Make sure if you bring food in to label it with her name, room number and date. Hospitals and healthcare facitilies...
  15. W

    Kaitlyn is in the hospital

    There should be a snack pantry on the floor some place where you can store snacks in the refrigerator. Usually they have jello, pudding, pop tarts, soups that you can give her. Make sure if you bring food in to label it with her name, room number and date. Hospitals and healthcare facitilies...
  16. W

    Waiting is very difficult...

    My four year old had his first sweat test yesterday. It came back at a 57. He is in the first percentile for his weight and heigth. He has had pneumonia four times (currently has pneumonia) in five months and a four day hospitalization for an acute asthma attack. He is failure to thrive and...
  17. W

    Waiting is very difficult...

    My four year old had his first sweat test yesterday. It came back at a 57. He is in the first percentile for his weight and heigth. He has had pneumonia four times (currently has pneumonia) in five months and a four day hospitalization for an acute asthma attack. He is failure to thrive and...
  18. W

    Waiting is very difficult...

    My four year old had his first sweat test yesterday. It came back at a 57. He is in the first percentile for his weight and heigth. He has had pneumonia four times (currently has pneumonia) in five months and a four day hospitalization for an acute asthma attack. He is failure to thrive and...
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