Search results

I'm feeling the same way right this moment. I'm in my last year, and let me tell ya it's been tough to stay up with my class, come hell or high water. Now my docs are putting me on a transplant list, so it's kinda cramping my style. Tonight I've been feeling really down b/c, like you said, I...

I would say that the best way to make the lesson "stick" if they seem to want to experiment is to let them know what they stand to lose. I like to be active, so I don't even go to really smoky bars with my friends, even though I want to, because it has REALLY negative effects. I agree that you...

I would definetly suggest enzymes, if he's not on any. I was diagnosed at 11, and the first thing my doc did was say "you weigh 58 pounds and you're goin' on enzymes!" I was lucky, I only had to take two, which was good. But try that. If he's already on enzymes, he might just need to be pushed...

Scarlett,I completel understand the way you feel. It can be hard to speak up in class, and I also find it hard to tell my profs b/c I don't want pity, and I also don't want special treatment. Understandable. Some of my profs know b/c I've gotten sick and they HAD to know, but usually I don't...

I agree with the "tell them not to read things" philosophy. Some of my friends that have the hardest time with it are the ones who know the most about it. My last boyfriend didn't know anything, so I had to warn him NOT TO READ. I used to dread the genetics chapter in Bio because we would ALWAYS...

I'm a bit different from the general critieria. My doc wants me to get a transplant b/c I have a way of contracting weird bugs that really knock out my system, and I tend to recontract them pretty frequently. My FEV1s and o2 levels probably aren't enough to qualify me (I don't use oxygen...my...

I'm not a parent, but a 21-year old with CF, and I've had a rough go of it since I hit college. While it hasn't been easy, I will say that it has made me the person I am. I feel stronger and more grounded because I know that life is the best thing anyone can give a child. I've almost died twice...

Hi everyone. I was on the phone this afternoon talking to my transplant coordinator up at the Cleveland clinic. I'm kind of jumpy about this whole idea, and even though I've talked to my docs, parents, etc. about it I still have a lot of questions and what ifs. I would love any comments...

First of all, let me say how great this is to talk about!!! I have a hard time relating to my peers about body issues, mainly because I am so thin. I've had people tell me right off that they don't like me because of the way I look (retarded or what???). But here's my input for what we've been...

Hi! I was diagnosed at 11, and have lived my life fairly normally. I'm 21 now, and I'm a double major at school,I'm a Congressional intern, and I work for my political party's state board. I'm also in a million things at school. CF doesn't hamper my activity except when I try to do everything...

Hi! I was diagnosed at 11, and have lived my life fairly normally. I'm 21 now, and I'm a double major at school,I'm a Congressional intern, and I work for my political party's state board. I'm also in a million things at school. CF doesn't hamper my activity except when I try to do everything...

Hi everyone...thanks so much for all the opinions and help. I wasn't too thrilled about this whole idea to begin with, but after hearing how much you guys like it, I think it'll be OK. I was mainly concerned about how much it would restrict my activity, but I'm glad to know it shouldn't. Thanks...

Hi everyone...thanks so much for all the opinions and help. I wasn't too thrilled about this whole idea to begin with, but after hearing how much you guys like it, I think it'll be OK. I was mainly concerned about how much it would restrict my activity, but I'm glad to know it shouldn't. Thanks...

Hi! I'm a twenty-one year old senior in college, and I was recently admitted to the hospital (aka, the resort<img src="i/expressions/face-icon-small-smile.gif" border="0">) in June/July, and we discovered that my veins are shot (what a shock, right?). They can't even get PICCs in anymore. So my...

When I was five I hadn't been diagnosed with CF yet (I was diagnosed at 11), but I did have epilepsy (which went away when I was 9, thank God), but my mom still watched me like I hawk when I went to school. But I never noticed her watchfullness, and I'm really grateful to them now. When CF did...

I've had achiness all over since I was about 15 (I';m 21 now), and my doctor ran a blood test to check for arthritis. It came back negative, but she perscribed me Vioxx and it works really well w/ relieving all the achiness. The ibuprofen, et al. didn't really cut it, but this does, and it's great.

Just something I wanted to add...I'm twenty-one now, but I was 16 the first time I got this. So yes, it does happen to young girls, sadly!! I felt like a complete alien when they told me that I had this bacteria. So it's nice to know I'm not alone.

Sean,I am a twenty-one year old college student, and my CF hasn't been particularly easy. I've been in the ICU for two weeks and after that my right lung collapsed in two places, yada yada yada. Needless to say, it has not been fun. But I don't think denial helps. This is part of you, just like...

Actually, I forgot to log in so my name's not on the one under me. I also had a thought...the Vest works well for me, not only with airway clearance, but with lifestyle too. I'm a college student, so I can easily do it to myself. It isn't the most portable thing, so I use an acappella to travel...

Yes, I have had this twice (lucky me!!). It's really not that bad...it does require three different drugs for about 2 years. My only problem with these drugs is that I have a fairly sensitive stomach (at least when it comes to drugs), so it took awhile for my doctors to adjust the dose so that I...