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I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...

I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...

I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...

I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...

I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...

At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.

At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.

At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.

At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.

At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.

We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!

We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!

We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!

We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!

We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!

Maci was diagnosed at almost 2yrs old with failure to thrive and was admitted upon diagnosis. She has done very well until this year, she was admitted since august of last year every 8wks for 2 to 3 wks at a time. We did not know what was going on, we took her to the Minnesota clinic because...

Maci was diagnosed at almost 2yrs old with failure to thrive and was admitted upon diagnosis. She has done very well until this year, she was admitted since august of last year every 8wks for 2 to 3 wks at a time. We did not know what was going on, we took her to the Minnesota clinic because...

Maci was diagnosed at almost 2yrs old with failure to thrive and was admitted upon diagnosis. She has done very well until this year, she was admitted since august of last year every 8wks for 2 to 3 wks at a time. We did not know what was going on, we took her to the Minnesota clinic because...

Maci was diagnosed at almost 2yrs old with failure to thrive and was admitted upon diagnosis. She has done very well until this year, she was admitted since august of last year every 8wks for 2 to 3 wks at a time. We did not know what was going on, we took her to the Minnesota clinic because...

Maci was diagnosed at almost 2yrs old with failure to thrive and was admitted upon diagnosis. She has done very well until this year, she was admitted since august of last year every 8wks for 2 to 3 wks at a time. We did not know what was going on, we took her to the Minnesota clinic because...