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Make a Wish foundation
U do not have to be extremely ill to receive a wish. I have 3 cf munchkins and we have gotten one wish granted several years ago and actually r in the process of our second one now. U contact the foundation and they will take some info from u then contact ur cf doctor for wish approval. I like...- forroshis
- Post #3
- Forum: Teenagers and Young People
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to those with g-tubes
I have three kiddos with g-tubes and every so often they will get sick after being hooked up for the night. Most of the time we have determined it'll happen after either their rate has changed and it is a lil too high for their tummy to handle or if they ate to much too close to the time of... -
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two weeks on kalydeco!
<div class="FTQUOTE"><begin quote>Information is incorrect and proven to be just so. As the job of the moderator it is our duty to moderate mis-information. This post has been edited for that reason. - Moderator. For information on the rules you can refer to the code of conduct...- forroshis
- Post #13
- Forum: CFTR Modulation and Gene Therapy Talk
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two weeks on kalydeco!
<div class="FTQUOTE"><begin quote>Information is incorrect and proven to be just so. As the job of the moderator it is our duty to moderate mis-information. This post has been edited for that reason. - Moderator. For information on the rules you can refer to the code of conduct...- forroshis
- Post #14
- Forum: CFTR Modulation and Gene Therapy Talk
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Food Stamps
U can not get more than the normal amount u recover based on ur income. I checked into this before as I have 3 children with CF and they just won't do it. It's federally and state mandated guidelines. -
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Food Stamps
U can not get more than the normal amount u recover based on ur income. I checked into this before as I have 3 children with CF and they just won't do it. It's federally and state mandated guidelines.