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Hi all~ A genetic test and sweat test both proved Catie, our 4 month old, does not have CF. We are relieved, but at the same time, we're worried b/c we still don't know what is wrong with her. Her pulmonologist seems to think Hirschsprung's disease is a good possibility. To me, it doesn't sound...

Hi all~ A genetic test and sweat test both proved Catie, our 4 month old, does not have CF. We are relieved, but at the same time, we're worried b/c we still don't know what is wrong with her. Her pulmonologist seems to think Hirschsprung's disease is a good possibility. To me, it doesn't sound...

Hi all~ A genetic test and sweat test both proved Catie, our 4 month old, does not have CF. We are relieved, but at the same time, we're worried b/c we still don't know what is wrong with her. Her pulmonologist seems to think Hirschsprung's disease is a good possibility. To me, it doesn't sound...

Thanks! Our doctor has already sent out for the expanded panel, so hopefully we'll have those results soon after the sweat test is done.

Thanks! Our doctor has already sent out for the expanded panel, so hopefully we'll have those results soon after the sweat test is done.

Thanks! Our doctor has already sent out for the expanded panel, so hopefully we'll have those results soon after the sweat test is done.

Hi all~ I posted a few days ago that my 4-month old had been presumptively diagnosed with CF and is being treated with enzymes, breathing treatments, CPT, etc. Her doctor called this morning and said the gene study was negative. This is the one that tests for 90% of the CF genes. He said that...

Hi all~ I posted a few days ago that my 4-month old had been presumptively diagnosed with CF and is being treated with enzymes, breathing treatments, CPT, etc. Her doctor called this morning and said the gene study was negative. This is the one that tests for 90% of the CF genes. He said that...

Hi all~ I posted a few days ago that my 4-month old had been presumptively diagnosed with CF and is being treated with enzymes, breathing treatments, CPT, etc. Her doctor called this morning and said the gene study was negative. This is the one that tests for 90% of the CF genes. He said that...

Hi there~ I'm April, and I'm writing in regards to my daughter Catie, who is 4 months old. Catie was born at 37 weeks and was 8 lbs 8 ounces. From the start she had some breathing difficulties... her heart rate would drop with every contraction and she didn't "pink up" quite fast enough when she...

Hi there~ I'm April, and I'm writing in regards to my daughter Catie, who is 4 months old. Catie was born at 37 weeks and was 8 lbs 8 ounces. From the start she had some breathing difficulties... her heart rate would drop with every contraction and she didn't "pink up" quite fast enough when she...

Hi there~ I'm April, and I'm writing in regards to my daughter Catie, who is 4 months old. Catie was born at 37 weeks and was 8 lbs 8 ounces. From the start she had some breathing difficulties... her heart rate would drop with every contraction and she didn't "pink up" quite fast enough when she...