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  1. E

    tummy problems

    Hi Rubie's mom, My 4yo daughter has not been diagnosed with CF yet, but she was diagnosed with pancreatic insuffiency at 2 and has been on enzymes since. I know exactly what you are talking about! She has the same problem. Usually after she poops it will go down for a while and feel soft...
  2. E

    tummy problems

    Hi Rubie's mom, My 4yo daughter has not been diagnosed with CF yet, but she was diagnosed with pancreatic insuffiency at 2 and has been on enzymes since. I know exactly what you are talking about! She has the same problem. Usually after she poops it will go down for a while and feel soft...
  3. E

    tummy problems

    Hi Rubie's mom, My 4yo daughter has not been diagnosed with CF yet, but she was diagnosed with pancreatic insuffiency at 2 and has been on enzymes since. I know exactly what you are talking about! She has the same problem. Usually after she poops it will go down for a while and feel soft...
  4. E

    18 month old possible CF, question?

    I just love this forum!! I think I have gotten better information here than from most of my doctors!! Thank you all for the concern for me and my daughter as she went through the EGD and Colonoscopy yesterday. She did fine. Colonoscopy looked good so now we are just waiting the 2 weeks for...
  5. E

    18 month old possible CF, question?

    I just love this forum!! I think I have gotten better information here than from most of my doctors!! Thank you all for the concern for me and my daughter as she went through the EGD and Colonoscopy yesterday. She did fine. Colonoscopy looked good so now we are just waiting the 2 weeks for...
  6. E

    18 month old possible CF, question?

    I just love this forum!! I think I have gotten better information here than from most of my doctors!! Thank you all for the concern for me and my daughter as she went through the EGD and Colonoscopy yesterday. She did fine. Colonoscopy looked good so now we are just waiting the 2 weeks for...
  7. E

    18 month old possible CF, question?

    One more thing...they also told me that my kids might outgrow it. I don't know if I believe that. My daughter is having a repeat endoscopy and a colonoscopy today to compare pancreatic function to her last test. Any prayers would be appreciated Edna
  8. E

    18 month old possible CF, question?

    One more thing...they also told me that my kids might outgrow it. I don't know if I believe that. My daughter is having a repeat endoscopy and a colonoscopy today to compare pancreatic function to her last test. Any prayers would be appreciated Edna
  9. E

    18 month old possible CF, question?

    One more thing...they also told me that my kids might outgrow it. I don't know if I believe that. My daughter is having a repeat endoscopy and a colonoscopy today to compare pancreatic function to her last test. Any prayers would be appreciated Edna
  10. E

    18 month old possible CF, question?

    Hi Sounds like you have the same thing going on with your son as I do with my daughter and son. Please read my post entitled "Negative sweat test but PI and Recurrent Pneumonia". My kids started with just GI symptoms but now both have had recurrent pneumonia. The have each had three negative...
  11. E

    18 month old possible CF, question?

    Hi Sounds like you have the same thing going on with your son as I do with my daughter and son. Please read my post entitled "Negative sweat test but PI and Recurrent Pneumonia". My kids started with just GI symptoms but now both have had recurrent pneumonia. The have each had three negative...
  12. E

    18 month old possible CF, question?

    Hi Sounds like you have the same thing going on with your son as I do with my daughter and son. Please read my post entitled "Negative sweat test but PI and Recurrent Pneumonia". My kids started with just GI symptoms but now both have had recurrent pneumonia. The have each had three negative...
  13. E

    Negative Sweat Tests but PI and Recurrent Pneumonia????

    Hey everybody. I need some advice. I have 3 children. My oldest is seemingly fine, but that's not the case with my younger two. Leila is 4 and was diagnosed Pancreatic Insuffiency at age 2. She has had 3 negative sweat tests, and the common genetic screening has come back negative. She...
  14. E

    Negative Sweat Tests but PI and Recurrent Pneumonia????

    Hey everybody. I need some advice. I have 3 children. My oldest is seemingly fine, but that's not the case with my younger two. Leila is 4 and was diagnosed Pancreatic Insuffiency at age 2. She has had 3 negative sweat tests, and the common genetic screening has come back negative. She...
  15. E

    Negative Sweat Tests but PI and Recurrent Pneumonia????

    Hey everybody. I need some advice. I have 3 children. My oldest is seemingly fine, but that's not the case with my younger two. Leila is 4 and was diagnosed Pancreatic Insuffiency at age 2. She has had 3 negative sweat tests, and the common genetic screening has come back negative. She...
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