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Bill....I am talking about a local NH hospital....supposedly CF Approved...The best place to go here in NH is Dartmouth's CHAD center but it is too far away for my husband to be travelling back and forth to and he can't stay up there with me as we have animals that need taking care of.

My last hospitalization was a constant battle with RT...pharmacy...nurses. #1 They tried to use the same neb for pulmozyme and albuteral....more than once. #2 Found out the pharmacy was not keeping the pulmozyme refrigerated. #3 They kept trying to hang neb equip on wall behind my bed on 02...

While on those same meds for the treatment of my MAC....all bodily fluids were rust colored (tears, sweat, urine)...had extreme loss of apetite and lost a lot of weight....had lightheadedness and nausea occasionly....took the meds for 7 months until I felt the cure was worse than the...

Joni....Happy belated Birthday Wishes......

I was put on Tobi via Nebs and after coughing through 3 treatments...my pulmonologist decided to watch me take my 4th treatment to make sure I was doing it right....3 minutes into treatment and coughing so bad my face turned blue...he shut down treatment and said, "it is evident that you can not...

I took the meds for 7 1/2 months until I just couldn't go on. My reaction was joint pain, headaches, extreme fatigue and weight loss. I also had rusty orange colored urine, tears and sweat. Have a friend who was on the treatment for 18 months and only had some side effects in very beginning...

I have it and it is one of the reasons my current lung Dr. finally agreed to test me for CF. It shows in all but 1 lobe of my lungs...so I guess you could say I have a severe case.

I have it and it is one of the reasons my current lung Dr. finally agreed to test me for CF. It shows in all but 1 lobe of my lungs...so I guess you could say I have a severe case.

I have it and it is one of the reasons my current lung Dr. finally agreed to test me for CF. It shows in all but 1 lobe of my lungs...so I guess you could say I have a severe case.

You are not alone.....many of us suffer from this embarassing situation. Exercise helps but does not stop this. My doc says surgery will help for a while but with the coughing fits...it is not likely to last. He also said the pills advertised are mainly to stop the urgency feeling of having to...

You are not alone.....many of us suffer from this embarassing situation. Exercise helps but does not stop this. My doc says surgery will help for a while but with the coughing fits...it is not likely to last. He also said the pills advertised are mainly to stop the urgency feeling of having to...

You are not alone.....many of us suffer from this embarassing situation. Exercise helps but does not stop this. My doc says surgery will help for a while but with the coughing fits...it is not likely to last. He also said the pills advertised are mainly to stop the urgency feeling of having to...

Jada, I hope the Nexium helps....I had similar situation quite awhile back and it did turn out to be reflux but when it was happening it was pretty scary. Hope Nexium does the trick for you!!

Jada, I hope the Nexium helps....I had similar situation quite awhile back and it did turn out to be reflux but when it was happening it was pretty scary. Hope Nexium does the trick for you!!

Jada, <br /> <br />I hope the Nexium helps....I had similar situation quite awhile back and it did turn out to be reflux but when it was happening it was pretty scary. Hope Nexium does the trick for you!!

Hi, 5 children: Son, 41 w/cf, twin sons, 28 carriers, daughter, 27 carrier, daughter, passed on w/CF. I had normal/easy pregnancys with each of them. Good luck!!

Hi, 5 children: Son, 41 w/cf, twin sons, 28 carriers, daughter, 27 carrier, daughter, passed on w/CF. I had normal/easy pregnancys with each of them. Good luck!!

Hi, 5 children: Son, 41 w/cf, twin sons, 28 carriers, daughter, 27 carrier, daughter, passed on w/CF. I had normal/easy pregnancys with each of them. Good luck!!

I used to wear a bracelet but have found that, if they do not really look like a medical bracelet, hospital staff do not even look at it and even if they do look like a medical bracelet, they are sometimes overlooked. My hospital recommended a necklace because most of the time my quick trips to...

I used to wear a bracelet but have found that, if they do not really look like a medical bracelet, hospital staff do not even look at it and even if they do look like a medical bracelet, they are sometimes overlooked. My hospital recommended a necklace because most of the time my quick trips to...