Search results

  1. A

    contact

    Should I be worried about my daughter having contact with a Cf adult that has had a lung transplant? Are there still risks of cross infection if someone has had a transplant? Amy
  2. A

    Augmenten

    My daughter started this today for a cough. This is the first time "treating" anything CF related. She has always cultured staph but this is the first time she's had any symptoms. What can I expect? Her dr told me Augmenten can give really bad diarrhea. I don't want her to lose any...
  3. A

    What to do?

    Ok, so my 3 yr old has her very first illness with a fever since being diagnosed this summer. She said her whole body aches and she is sleeping all the time. My question is....do I still do her CPT? I can't imagne beating on her when she feels this rotten. What does everyone else normally...
  4. A

    stuffy nose

    For the past 3 mornings my daughter has woken up with a really bad stopped up nose. She gets upset b/c she can't breathe at all through her nose. My question is.....could this be CF related??? She had a cold last week but it has been gone now for 5 days..........would thise stuffy nose be...
  5. A

    awareness color?

    Is there a specific color for CF awareness? I'm in the process of ordering some merchandise and I'm seeing some different colored items. The awareness bracelet is blue but the car ribbon is purple. I guess it doesn't really matter but I want to make sure I'm getting the best products out...
  6. A

    website?

    I found a website a month or two ago that had some really cool Cf things for sale. Now that I know what I want to order, I can't find the website anymore. Does anyone know a CF website that has stuff to purchase? The things I remember they were selling were keychains and those magnetic...
  7. A

    Fruit

    I was told that my daughter wouldn't need an enzyme with fruit b/c they had no fat or protein in them. But recently I found out that she would need an enzyme with bananas and I noticed that our orange juice has protein in it. Does anyone know any other fruits that she might need enzymes with...
  8. A

    toothbrushes?

    I'm still new to CF(my daughter was diagnosed 5 months ago) and I've been reading the recent posts about Pseudomonas. If I understand right, it is more likely to grow in moist things. Wouldn't toothbrushes be a risk? What does everyone do about their toothbrushes? Do you clean or soak them...
  9. A

    "water filters" and bacteria

    Hi, Just wondering if anyone has any knowledge of the benefits of installing sophisticated, hi-tech water filters on their home water supply in regards to keeping pseudomonas and the like out of the drinking water? Are there any of these types of filters that block that sort of thing? Thanks...
  10. A

    Another enzyme issue...argh!

    I am new to CF(my daughter was diagnosed 2 months ago) and these enzymes are giving me a fit. I have already asked one question on the boards about them and now I have another one. This weekend her enzymes just stopped working and her stools went back to how they were before she was diagnosed...
  11. A

    quick question

    My daughter will be 3 in October and she was just diagnosed with CF in June. We had her signed up to start preschool this fall but her doctor suggested we hold off for another year. Anyway, I want to get her signed up for something this year and her PT suggested she do sports that are good for...
  12. A

    I need help with enzymes

    My daughter was recently diagnosed with cf and I'm realizing how frustrating these enzymes can be. Am I off base expecting her stools to appear completely normal or will they always be a little greasy and yellow? She is on Creon and she is at her maximum dosage. They have definitely helped a...
Top