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I think accepting CF as apart of who we are is a hard process but a healthy one. Learning about your disease and it's effects can be devastating. Along with that comes grief. But understanding, accepting, and not being afraid of being different is a very healthy way to go on and holding on to...

I think accepting CF as apart of who we are is a hard process but a healthy one. Learning about your disease and it's effects can be devastating. Along with that comes grief. But understanding, accepting, and not being afraid of being different is a very healthy way to go on and holding on to...

I think accepting CF as apart of who we are is a hard process but a healthy one. Learning about your disease and it's effects can be devastating. Along with that comes grief. But understanding, accepting, and not being afraid of being different is a very healthy way to go on and holding on to...

Hey, this may sound silly. But I had the bipap at one point and never had itching issues. You may want to check for severe dandruff or possible lice, both of which could cause a lot of irritation and itching. Hope you figure it out!

Hey, this may sound silly. But I had the bipap at one point and never had itching issues. You may want to check for severe dandruff or possible lice, both of which could cause a lot of irritation and itching. Hope you figure it out!

Hey, this may sound silly. But I had the bipap at one point and never had itching issues. You may want to check for severe dandruff or possible lice, both of which could cause a lot of irritation and itching. Hope you figure it out!

I had an amazing experience at Duke! Like Patty said, you need to participate in their pulmonary rehab. Which I did pre- and post transplant. If I didn't I seriously doubt I'd be alive today, no joke. They require it to make sure your in tip top shape for the surgery, plus they give alot of...

I had an amazing experience at Duke! Like Patty said, you need to participate in their pulmonary rehab. Which I did pre- and post transplant. If I didn't I seriously doubt I'd be alive today, no joke. They require it to make sure your in tip top shape for the surgery, plus they give alot of...

I had an amazing experience at Duke! Like Patty said, you need to participate in their pulmonary rehab. Which I did pre- and post transplant. If I didn't I seriously doubt I'd be alive today, no joke. They require it to make sure your in tip top shape for the surgery, plus they give alot of...

I had an amazing experience at Duke! Like Patty said, you need to participate in their pulmonary rehab. Which I did pre- and post transplant. If I didn't I seriously doubt I'd be alive today, no joke. They require it to make sure your in tip top shape for the surgery, plus they give alot of...

I had an amazing experience at Duke! Like Patty said, you need to participate in their pulmonary rehab. Which I did pre- and post transplant. If I didn't I seriously doubt I'd be alive today, no joke. They require it to make sure your in tip top shape for the surgery, plus they give alot of...

I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more...

I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more...

I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more...

I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more...

I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more...

Someone sent me a lovely necklace as a gift. Lisa's handmade collection is really beautiful and I am advertising since she donates 100% to CFF. Consider buying one for yourself, a friend, or whoever!! <a target=_blank class=ftalternatingbarlinklarge...

Someone sent me a lovely necklace as a gift. Lisa's handmade collection is really beautiful and I am advertising since she donates 100% to CFF. Consider buying one for yourself, a friend, or whoever!! <a target=_blank class=ftalternatingbarlinklarge...

Someone sent me a lovely necklace as a gift. Lisa's handmade collection is really beautiful and I am advertising since she donates 100% to CFF. Consider buying one for yourself, a friend, or whoever!! <a target=_blank class=ftalternatingbarlinklarge...

Someone sent me a lovely necklace as a gift. Lisa's handmade collection is really beautiful and I am advertising since she donates 100% to CFF. Consider buying one for yourself, a friend, or whoever!! <a target=_blank class=ftalternatingbarlinklarge...