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I posted this in the families section too, but I will take as much advice as I can. We are going to Disney World in two weeks and I know there  have been lots of people on here that have posted about ways to not have to wait in lines there because of their CF. So, do I need to bring a doctor's...

Hi everyone, I know this has been covered before, but I am going to DisneyWorld in two weeks and have some questions. I know there is a way to avoid having to wait in all the long lines for rides since I have CF, but what do I have to do?? I think I remember reading before that a doctor's note...

<P>I'm not really sure I am wording this correctly, but does anyone know how taxes work with social security? Do they automatically hold taxes or do we have to pay in at the end of the year or do they not tax on SSD benefits?? I just got approved, so I am trying to prepare for what's going to...

Hey everyone, I am just wondering how long everyone waited before hearing a decision on SSDI. I applied (with the help of Beth Sufian) in January 2011 and still have not heard anything. I am not working, and I qualify under all 3 of their criteria for Cf. Just can't figure out why it is taking...

Not sure how many of you know Ellie (aka TIN) she is fighting the fight of her life in the hospital right now. She was admitted on July 1st for a bowel obstruction and ended up with pneumonia from that. She has been in the ICU for quite awhile now and on a vent for about 3 weeks. Yesterday she...

Just wanted everyone to know that Ricky (Dizzymd123...I think that's his login name) got thee call this afternoon! The lungs are being flown in from Ohio as I type this! He will be transplanted in WI. Please keep him your thought and prayers! Feel free to check out his caringbridge site which...

I've seen a few people write this...mostly in the subject, and maybe I'm an idiot, but I have no idea what it means! Help!

Has anyone heard anything more on Frankie's death and what she died from?? Last I read, an autopsy was going to be done. According to a statement from her mom, she died at home and it was pretty unexpected. Just wondering if anyone heard anymore.

Thank you all so much for IMing me with your support regarding my job. I love what I do and worked very hard to get there! It took me 8 years to complete a 4 year degree due to multiple hospitalizations, but I overcame all of that!! As for other people lurking around here, I really think the...

I have seen a few people talk about huffing in here as a treatment. I have never heard of it. What is it??

Hey everyone...a few years ago I was diagnosed with MAC and told the only treatment is an 18 month course of 3 different antibiotics. At the time I refused the treatment because I was trying to get pregnant and of course couldn't be on all those meds with pregnancy. Well, now I had the baby and...

Hey everyone, now that I'm starting to join in some of these topics, how do I put in my name, age, etc...at the end of my replies?? Do I have to type everything in everytime?? For example, after every reply I type in: Kris, 29 with Cf, married, mom to 4 month old son (no CF!). How do I make it...

It seems like everyone knows each other in here. Are you all from the same state?? Is anyone from Wisconsin??