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Did any of you have overwhelming cravings for salt during your pregnancy? When I was pregnant with Jaelyn, over ten years ago, I ate so much salt my coworkers used to tease me and tell me they would buy me a salt block and I could go to town etc. I mean I would eat whole rock salt crystals, pour...

<P>To my CF friends and family: If anyone is in need of enzymes, I have an over abundance of Creon 24k IU and ZenPep 20k IU. If you need them or know someone who does, msg me and we'll get ya hooked up. <3 </P> <P> </P> <P><A href="mailto:JDprecious@aol.com">JDprecious@aol.com</A></P>

We got a family dog last year in March of 2009. He is a black lab that stays inside full time. He plays outside alot and sheds in the house even more. It is this same time last year that Jaelyns cultures went from clear as a whistle to culturing anything from Pseudo, Yeast, Regular Staph, etc...

My younger sister found out a few months back that she is a carrier of the DF508 gene (as am I)and she is about 6 months pregnant with her first child. The doctor/insurance company refused to test her husband for the CF genes even though there is a history of CF on our side of the family...

Hey guys, We just got this suuuuper duper cool neb called the Aero Neb Go. This little thing is great, we love love love it! It does Jae's Pulmozyme neb in about 3 minutes and doesn't even make a sound. Her old Pari neb sounded like a jet engine compared to this thing. Literally, has zero noise...

And by this I don't mean sob or anything like that, so let me clarify... At what age did you realize that a certain therapy worked better for you than another (for instance, flutter vs. manual cpt vs. vest), what meds either opened you up and made breathing easier or possibly caused tightness in...

If you have ever been on iv's before, what is the longest consecutive time you have been on them? I was reading last night about another CF'er and I was wondering why they didn't just leave this person on IV's permanently if that was what the body responded to. Off of iv's, the person's...

So, we don't know which side of the family the CF gene comes from (my mom's side or my dad's). I was always worrying for my 3 younger sisters (2 from my mom's second marriage, one from my dad's second marriage) whether or not they would have the CF gene and their children could be at risk for...

This has been happening for over a year. I have asked Jeff and asked Jeff over and over to have a conversation with his exw about our daughter Alyssa. She constantly is coughing and has a snotty nose. The exw could care less to take her to the doctor or give her any meds while at her house...

We go in July 23rd for 14 days and I would love to hear all of your ideas to pass the time. What fun things do you do? Anything helpful to take with you, anything at all please let me know. Obviously, Ive got clothes, her vest and meds, you guys help me fill in the rest. Love to all, Jess

Hey guys, I read on another thread that Eflow was "a Godsend" and I wanted to find out if maybe it is something that could benefit us. We currently use the ProNeb Ultra We switched Albuterol for the ProAir Inhaler Our aerosols are Pulmozyme and Tobi Our next clinic is in 3 days and I will...

Jaelyn has been coughin up a bit of mucus from her lungs since getting fitted for a bigger vest. Now that we are doing the vest more often she is coughing up some mucus like she should. That is the point of the vest right? We had our clinic visit yesterday and a doc we dont normally see wants...

Well her symptoms started within a month of her being born ( of course I didn't know it at the time) I chose to breast feed her and at her 1 month checkup the doc diagnosed her with failure to thrive... basically malnourished and skinny because I wasn't producing enough milk (which wasn't the...

Hi all! I am new to these boards but not to CF. My 5 yr daughter, Jaelyn, has CF. My newborn daughter, Jamisyn, does not. I just wanted to introduce myself and say that I have been reading for about 6 hours nonstop! It is 7 am and I have not yet been to bed since I have found these forums. Now...