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Hi All Laras culture came back and her Doc said she is culturing Staph, she is scheduled for an appt. on Sept. 6, when she will also get an x-ray, so the Dr. can compare it with the one she had in March. I was just wondering what they do for Staph? Marie

Hi Everyone I got the results of Laras genetic testing today.Her Dr. says she has Atypical CF, her 1 mutation is, she said, very rare R75Q cftr variant; I cant remember the other one, which she said is common, I have an appt with the CF team on Thurs.8/15. She is going to do tests to see if...

Hi Everyone, I have been lurking here for weeks, reading the posts and news. The last time I posted was ??? But I cannot beleive it has been 6 1/2 weeks since my daughters blood was drawn for genetic testing (Quest complete) and I still have no results!! What the F**K!!??? This is getting...

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past...