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I am completely serious though if I was reading this I would think I was making it up. My older Pari Trek came with nebulizer tubing that had blue wings on each end. The machine is now probably 3 years old and I only use it if I'm traveling overnight as I can skip meds that aren't...

I have traveled to other countries but just thought about it and need a quick answer. Do I need a converter or adapter for my nebulizer, etc.? I'll be in Cancun, Mexico in the tourist strip. I also seem to have lost the label on my nebulizer solution box for cromolyn sodium. I know I should...

I've recently switched insurance, doctors, and pharmacies because of a move. I have been using Cromolyn Sodium for a year after not having used it for several years. I can tell it makes a difference in quality of life but not necessarily in terms of numbers. My insurance did a flat out denial...

I am one of those off the wall allergy sufferers. I have been sneezing pretty much non-stop for the last few days. Everything else seems ok and it's not a sinus exacerbation. My question for those of you with allergy-related issues is when should I push for more (i.e. oral steroids) to take care...

Hi. I don't post often because I am lucky and am not frequently sick. I thought I was having an allergy exacerbation last week so I went to my campus health service to get a prednisone burst to get things under control. Because of my medical history they wouldn't do a prescription over the...

I've had some chest wall pain lately. I've had it off an on in the past. It would last for maybe a half hour and then go away. I've now had it off and on over the last week or so. On a pain scale from 1 to 10, it's probably a 1 but it is annoying because it's become constant. It doesn't get...

I had asthma issues (they seem to arise just prior to menstruation) about a week and a half ago. We upped inhaled steroids because it wasn't that bad. That seemed to work. I was seen for a follow-up at the beginning of the week. Yesterday I was shopping. I'd done nothing out of the ordinary...

I know there are several of us in the Raleigh-Durham-Chapel Hill area and just wanted to give you a heads up that the Stenzel sisters will be speaking/reading from their book tomorrow. Sorry I didn't post this sooner but just happened to look and see this. I don't think I'll be there because I...

I'm having a really hard time with food allergies. I'm not getting a balanced diet these days and I am concerned that between this and other issues going on I may be becoming malnourished (despite a little too healthy weight). Anyone else out there with (a lot of) food allergies? How do you stay...

I am PS or at least growing up I was. I've noticed recently that I am having symptoms I would associate with PI. I am currently overweight, though not significantly, so I imagine I am in no immediate danger if I am PI. Can a person become PI if they hadn't been previously? Several months ago I...

I've mentioned a few times I'm traveling in the next couple of months. One visit in particular is a longer visit to NYC. We are actually taking the train from the south. I have never traveled on a train in the US and have some questions and concerns that some of you might be able to help with...

Sorry for posting this in a forum. I'm at a loss for what to do. I recently switched from a regular work insurance to graduate student/research assistant insurance. As a result I have to be seen through the campus health service clinic. I've had a dragging sinus or allergy thing going on for...

I'm wondering how many people still use mucomyst. I am really thinking about asking my doctor to let me try it. I remember getting a lot better results with it than I do with pulmozyme now. In addition, mucomyst is a heck of a lot cheaper. I did have bronchospasm issues with mucomyst, though I...

I'm afraid this is a dilemma similiar to what I had as a teenager but now I'm reliving it as an adult. I am a graduate student, which I've said before. I will be presenting at three conferences in the next month. As most graduate students are, I am pratically broke so I try to save money when...

I'm sorry I ask for more help than I give. I'm having some issues I hope someone can help me think about or solve. I have really severe allergies plus really bad asthma and a lot of sinus issues. They all interact with each other (and also mess around with a little thing that begins with a c)...

My friends are trying to get pregnant. That left me wondering if pwcf should stay away from newborns because of what we culture. I've always heard babies are particularly susceptible to germs. Is this safe? I know my friends aren't even thinking about this yet but I want to know if it means I...

I know all of the reasons I should be exercising but it's been a year since I've done moderate exercise and two years since vigorous exercise. I was lucky because prior to that time my job was where I would get the exercise. I'd literally walk 8 miles a day as a result of my job (retail...

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline. I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic...

I'm wondering if anyone can share some insight into how you've felt or signs you've seen when you are desatting during exercise. I am lucky in that my pulmonary function is quite good given my age (27). It's generally somewhere in the 70% range. I tend to deal with more asthma issues than...

Terribly embarrassing problem to have as an adult. First let me apologize for having never posted before despite the fact that I am a frequent reader. Now that that's said, let me continue. I am a 26 year old female w/cf. I am relatively healthy with mainly respiratory and sinus involvement...