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  1. P

    Mycobacterium Avium Complex (MAC)

    Thank you for your reply. I hope things get better for you. I will look yp th National Jewish Hospial in Denver. Hang in there. Paula, mother of 18 yr old with cf
  2. P

    Mycobacterium Avium Complex (MAC)

    Thank you for your reply. I hope things get better for you. I will look yp th National Jewish Hospial in Denver. Hang in there. Paula, mother of 18 yr old with cf
  3. P

    Mycobacterium Avium Complex (MAC)

    My daughter has CF and had MAC two years ago, which resulted in 12 months of antibiotic treatment. She was very sick from all the medicine and so forth. We were told a few weeks ago that she has it again! Has any other CF patient out there had this bacteria? If so how did things go for you? What...
  4. P

    Mycobacterium Avium Complex (MAC)

    My daughter has CF and had MAC two years ago, which resulted in 12 months of antibiotic treatment. She was very sick from all the medicine and so forth. We were told a few weeks ago that she has it again! Has any other CF patient out there had this bacteria? If so how did things go for you? What...
  5. P

    How do you manage working when a child with cf goes through long bouts of illness?

    Thank you for all the reply's and hang in there, we will all figure out a balance between caring for our children with cf and working....
  6. P

    How do you manage working when a child with cf goes through long bouts of illness?

    Thank you for all the reply's and hang in there, we will all figure out a balance between caring for our children with cf and working....
  7. P

    How do you manage working when a child with cf goes through long bouts of illness?

    Thank you for all the reply's and hang in there, we will all figure out a balance between caring for our children with cf and working....
  8. P

    How do you manage working when a child with cf goes through long bouts of illness?

    Thank you for all the reply's and hang in there, we will all figure out a balance between caring for our children with cf and working....
  9. P

    How do you manage working when a child with cf goes through long bouts of illness?

    Thank you for all the reply's and hang in there, we will all figure out a balance between caring for our children with cf and working....
  10. P

    How do you manage working when a child with cf goes through long bouts of illness?

    thank you so much all of you for your replies. I to believe having the balance of God first is the biggest thing. He will direct our paths...I need to be patient and listen. I have at this time opted to work when she is well. That is about all I can do. Other doors will open in due season...
  11. P

    How do you manage working when a child with cf goes through long bouts of illness?

    thank you so much all of you for your replies. I to believe having the balance of God first is the biggest thing. He will direct our paths...I need to be patient and listen. I have at this time opted to work when she is well. That is about all I can do. Other doors will open in due season...
  12. P

    How do you manage working when a child with cf goes through long bouts of illness?

    thank you so much all of you for your replies. I to believe having the balance of God first is the biggest thing. He will direct our paths...I need to be patient and listen. I have at this time opted to work when she is well. That is about all I can do. Other doors will open in due season...
  13. P

    How do you manage working when a child with cf goes through long bouts of illness?

    thank you so much all of you for your replies. I to believe having the balance of God first is the biggest thing. He will direct our paths...I need to be patient and listen. I have at this time opted to work when she is well. That is about all I can do. Other doors will open in due season...
  14. P

    How do you manage working when a child with cf goes through long bouts of illness?

    thank you so much all of you for your replies. I to believe having the balance of God first is the biggest thing. He will direct our paths...I need to be patient and listen. I have at this time opted to work when she is well. That is about all I can do. Other doors will open in due season...
  15. P

    How do you manage working when a child with cf goes through long bouts of illness?

    that makes me feel better to know that there are others who struggle with this issue. I think the answer for us would be working from home. It was easier for us when she was younger because she did not have alot of issues, but in the last two years it has been quite difficult. I finally...
  16. P

    How do you manage working when a child with cf goes through long bouts of illness?

    that makes me feel better to know that there are others who struggle with this issue. I think the answer for us would be working from home. It was easier for us when she was younger because she did not have alot of issues, but in the last two years it has been quite difficult. I finally...
  17. P

    How do you manage working when a child with cf goes through long bouts of illness?

    that makes me feel better to know that there are others who struggle with this issue. I think the answer for us would be working from home. It was easier for us when she was younger because she did not have alot of issues, but in the last two years it has been quite difficult. I finally...
  18. P

    How do you manage working when a child with cf goes through long bouts of illness?

    that makes me feel better to know that there are others who struggle with this issue. I think the answer for us would be working from home. It was easier for us when she was younger because she did not have alot of issues, but in the last two years it has been quite difficult. I finally...
  19. P

    How do you manage working when a child with cf goes through long bouts of illness?

    that makes me feel better to know that there are others who struggle with this issue. I think the answer for us would be working from home. It was easier for us when she was younger because she did not have alot of issues, but in the last two years it has been quite difficult. I finally...
  20. P

    How do you manage working when a child with cf goes through long bouts of illness?

    We recently went through a long period of time that our child with cf, who is 16, was sick quite alot...IV's, hospitalization, home care....I had to take a leave of absence with my job...she is better now, thankfully...how do other parents manage?
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