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Hi Everybody, For those of you who nebulize colistin, have you noticed any joint or tendon pain? I neb it every other month, and I've begun to notice that 2-3 weeks into the months I'm on it I start getting pain in both my hips and shoulders. I'm wondering if it's related to the colistin. Any...

Hi Everybody, I've haven't posted on this site in a long time, but I read and learn from all of you regularly. I'm a 50+ woman with bronchiectasis and chronic sinusitis. I was diagnosed 13 years ago after my 6th case of pneumonia left me with a collapsed lung and in bed for a month, and a...

http://super-bronch.blogspot.co.il/2013/11/doing-bit-better-thoughts-on-why.html

Hi Everybody, For those of you who use the PARI eFlow (or other variation's of PARI's vibrating mesh) nebulizer, how do you travel with it. It's true that it's tiny, quiet and amazingly fast. However, you have to use an electric baby bottle sterilizer on the nebulizer heads after each use to...

Hi Everybody, I'm really sick of the noise and length of time it takes to do my treatments (I'm nebbing HTS and colistin) on the standard PARI compressor. Thus, I am considering buying an eFlow. I do not live in the US, and where I live the eFlow costs about $1,300. Does anyone know where...

I recently had a bad, but expected, exaccerbation. Expected becaused I travelled for work and knew I would end up sick afterwards. Knowing it's going to happen though doesn't stop the frustration of dealing with it or the limitations this disease puts on my life. I had been home sick for...

Hi Everybody, How low do your sats drop when you exercise? My PFTs are usually really good - 88-92% when I'm not sick. Last year I did pulmonary rehab (basically riding stationary bikes and walking on treadmills while having your sats monitored). My sats almost never went lower than 94% even...

<P><FONT size=1>I had a bad exacerbation in February and ever since then I have had a low grade fever on and off almost every day.  (Only rarely goes above 37.5)  Antibiotics lower it, some better than others, but a few days after I stop the fever appears again.  What's weird is that I don't...

About a month ago I had a bronchoscopy done because my pulmo suspects I have mycobacterium.  He is suspicious because I had a bad exacerbation at the end of February and ever since then I have had a recurring low grade fever.  (You can see more details about all of this in my blog posts via the...

I just wanted to share something with you on the topic of medicine and compassion. It's a little depressing, but I would appreciate your thoughts. <a target=_blank class=ftalternatingbarlinklarge...

Hi Everybody, I recently read that when nebulizing antibiotics one should not be in the presence of others unless a special filter is used on the nebulizer to keep others from inhaling the drug. For over a year I have been nebbing colistin, and noone ever said anything to me about this...

So here are the characteristics of what I consider a true friend: * Someone who treats me as a normal, healthy person when I'm feeling well * Recognizes that there is no such thing as me making a 100% commitment to a trip, date, or any other activity, and doesn't get upset when I have to...

Three days ago I started taking oral Cipro (500mg twice a day) for the first time. Last night I spent the entire night tossing and turning with pain in the joint of my big toe and the arch of my right foot. It was an achy pain, and didn't change when moving my foot/toes/etc. When I finally...

I have bilateral bronchiectasis (no CF) and had a bronchoscopy done a few weeks ago. I don't have all the results yet but the doctor said the results of the biopsy indicate infection only (no tumors or granulomas). 3 cultures were sent to the lab with the following results: B.A.L. Culture...

I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.) For the past 5 years I have been suffering from shortness of...

Hi Everybody, I know there are a handful of you on these boards who have non-CF bronchiectasis such as myself. Do any of you take Pulmozyme? I understand that it has been found quite effective for CF, but I haven't been able to find anything on the web regarding its effectiveness in non-CF...

Hi Everybody, I saw my pulmonologist last week and mentioned to him the idea of trying hypertonic saline. He thought that it was a really good idea. Why in all the years I have been seeing him he never suggested it is beyond me, but I'm happy that he was very open to the idea. What puzzles...

Very angry and need to vent. My husband is in the progress of being diagnosed with kidney damage. He is overweight and does not exercise, and has high blood pressure. It took me several years to get him to go on medication to lower his blood pressure, which he has finally done. However, time...

Hi Everybody, I haven't posted in a few months, and for those of you who don't remember me ... I'm a woman in my early 40s, I evidently don't have CF, but I have bronchiectasis and chronic sinusitis and some degree of asthma as well. In short, the information in these forums has been very...

Hi Everybody, This past summer I was in the process of being evaluated for CF and I posted several times to these boards. First of all, I want to thank you all. You helped me get through a very rough time and you provided lots of important information. Your support for each other, and for...