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It's been a while since I dropped in here last... I recently found out I growing some fun little bugs- Nocardia & MAI. They've got me on LONG-TERM course of Bactrim, right off the bat. I'm just looking for anyone is fighting these or has tackled them in the past. I'm still waiting to see the...

0bamacare is already hurting those that need affordable healthcare the most, CFer's especially. Since it passed. I now have to pay more out-of-pocket through BCBS. Tests and visits that were once covered 100% are no longer, add that to my co-pays, it is becoming very hard to make ends meet while...

I for one having been trying for several months to figure out what is causing my joint and muscle pain and have yet to get any answers, diagnosis or viable treatment. My CF doc ran numerous tests and reffered me to my GP feeeling it was not CF related. MY GP Thought it could be depression...

I for one having been trying for several months to figure out what is causing my joint and muscle pain and have yet to get any answers, diagnosis or viable treatment. My CF doc ran numerous tests and reffered me to my GP feeeling it was not CF related. MY GP Thought it could be depression...

Now there are several threads out there that touch on this issue but I felt it would be best to to start new one posing a few simple questions for those to answer. 1. Have you had your joint & muscle pain diagnosed? If so, how? 2. How do you treat your pain? 3. Is there anything that makes your...

Now there are several threads out there that touch on this issue but I felt it would be best to to start new one posing a few simple questions for those to answer. 1. Have you had your joint & muscle pain diagnosed? If so, how? 2. How do you treat your pain? 3. Is there anything that makes your...

David, you brought up medical toxicity as possible link to some our issues and I brought that up at my last CF check-up. My doc had me wean off and on all my CF meds to see if any changed with the joint pain and muscle aches. Nothing did change but I was able to rule that out as a cause. I did...

David, you brought up medical toxicity as possible link to some our issues and I brought that up at my last CF check-up. My doc had me wean off and on all my CF meds to see if any changed with the joint pain and muscle aches. Nothing did change but I was able to rule that out as a cause. I did...

How old is the PICC scars? Mine have itched for time to time and I have a few that have that done for several years after removal but never any hives...

How old is the PICC scars? Mine have itched for time to time and I have a few that have that done for several years after removal but never any hives...

Yeah, along with my joint pain I have a LOT of problems with my muscles. They ache all time... They're always as tight as guitar strings plus the occasional spasms come and go. It doesn't seem to matter how much I stretch out or work out.... They always give me problems. I very rarely run a...

Yeah, along with my joint pain I have a LOT of problems with my muscles. They ache all time... They're always as tight as guitar strings plus the occasional spasms come and go. It doesn't seem to matter how much I stretch out or work out.... They always give me problems. I very rarely run a...

I'll second that motion! A study is is definitely needed. I've been to 7 doctors and counting over the past several months to deal with joint and muscle pain and NO ONE has an answer as of yet... All my tests come back good and on paper I should be fine, now granted I have more then CF cooking...

I'll second that motion! A study is is definitely needed. I've been to 7 doctors and counting over the past several months to deal with joint and muscle pain and NO ONE has an answer as of yet... All my tests come back good and on paper I should be fine, now granted I have more then CF cooking...

Thanks for the input guys.... Now I've been a human pin cushion when comes to blood work as of late and all my Vitamin D levels, magnesium, potassium, electrolytes, etc.. have come back with flying colors, every time. From a CF stand point I should be fine and currently from a neuro stand point...

Thanks for the input guys.... Now I've been a human pin cushion when comes to blood work as of late and all my Vitamin D levels, magnesium, potassium, electrolytes, etc.. have come back with flying colors, every time. From a CF stand point I should be fine and currently from a neuro stand point...

Thanks for the suggestion... A true diagnois of what is causing the pain is my main focus and then go from there with some sort of a management plan for it... I don't just what to pop pills to hide the problem, especially if it is something serious.

Thanks for the suggestion... A true diagnois of what is causing the pain is my main focus and then go from there with some sort of a management plan for it... I don't just what to pop pills to hide the problem, especially if it is something serious.

I've just got to vent out here.... Now I've been dealing with some serious pain since mid-July in my legs and arms and now my back and even face... I've been chasing around to 5 different doctors to get a handle on it and no answer or real solution to address the problem! I'm ready to start...

I've just got to vent out here.... Now I've been dealing with some serious pain since mid-July in my legs and arms and now my back and even face... I've been chasing around to 5 different doctors to get a handle on it and no answer or real solution to address the problem! I'm ready to start...