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so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...

so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...

so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...

so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...

so here is the update! we went to Syracuse Friday..... and they think Kaley has an auto immune disease...she seems to be sick quite a bit lately but they say it is not cf. Dr Soultan says that her sweat isnt high enough for her to really be affected by cf...hmmm i think the more i go to appts...

we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!

we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!

we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!

we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!

we use the germ guardian too!!! its a life saver and we put a lot in it...as long as the lid fits tight then everything is sanatized!!!! we bought ours on amazon and it was 35 inc shipping! good luck!

neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...

neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...

neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...

neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...

neither one of my cfers have ever cultured anything...it just seems like they are always sick...and I dont know if its CF or well CF...hmmmm....My kids both have very high pulm func numbers....but they have a ton of mucus...it is just so hard to tell what they need....and i hate the fact that...

Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...

Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...

Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...

Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...

Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...