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Yesterday I took Kaley to the Dr. Third time in two weeks. Not our clinic but reg Dr. He is new to our practice and FULL of info which I love. He told me that some clinics are now putting CFers in the hosp 1x a yr for a tune-up even if not sick just due to changes in the care of CFers...

I have 2 w/ cf...Brent has had pneumonia 4x this yr...sinus surg ect and still seems to be getting sick...Kaley was on abx every other day last winter and they sd not to put her back on them again this winter however she has been on abx for the last month for crap...right now she has lots of...

After listening to brent cough for an hour straight and the xopenex treatment not work i decided to take him to the ER sat night.....He has pneomonia and they admitted him...i thought he would get out today but they told hubby that he has an infection and it has gotten into his bloodstream so...

we went on vaca and my mother decided to take it upon herself to take my sons temp...it was 99.6 and so she took it the next day and the same...it was always around noon...and he keeps complaining of a headache...is this cf??? does anyone notice this? or is this something more??? any ideas?

We are going to FL than GOD we are getting out of this snow......I have taken the vest/nebs w/ me by car but never by plane.... What should i do??? Is it counted as an xtra bag? We have the Incourage system...and what about my daughtors meds...i know the pulmozyme has to stay cold...any...

Just got husbands sweat test.....40.....sons was 60 w/ cf....daugh w/ cf was 16....still waiting on full panel for hubby.....We have THE VEST for our son....and today we are getting the Respitech version for our daughtor!!!!! I just got a huge box in the mail b/c we do our presc by mail order...

Just want you guys to keep my 2 in your prayers! Brent is having sinus surgery tomorrow and Kaley is having a Bronch on Friday..... Thx

I have been to benefit dinners for other people before but never a cfer....I feel like the prescription bills are controlling our lives now. B/C my hubby and I make good $ we cannot get ANY help on our presc bills and its costing us another mortgage payment per month...Im not trying to be...

I dont consider myself new anymore but for some odd reason I cannot send a photo to the photo gallery. I keep getting a returned email. I have been trying for months....LITERALLY... Please help!!!

Since fuel oil has risen tremendously we were thinking about buying a coal stove as our main heating source...im still new to the CF and want to hear your suggesstions on if you think this would be a bad heating source...as i see it-it really cant be any worse than the forced hot air by fuel...

We got my daughtor's gene sequence back and we know she is a carrier for R1162L and also she carries two mutations that says in the classification that they are benign and i am a little confused about this.....How do they know they are benign??? being that they are benign why do they even list...

My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs...

My son 6 diag in april is having a very hard time w/ the vest. He wants to play and not do the vest which i have not allowed him to miss.....the other night he woke up dreaming and saying he didnt want to do it. please dont make me do it mommy so i know that he is having a very hard time w/...

I have 2 children newly diag w/ cf....our son 6 is on the vest and some other things but no lung probs...our daughtor just diag shows very few signs...from what the dr says she needs to be on the vest too but i was wondering if there is a different vest besides the one from THE VEST b/c the...